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DTSTART;TZID=America/New_York:20251106T190000
DTEND;TZID=America/New_York:20251106T194500
DTSTAMP:20250626T204047Z
CREATED:20250626T204047Z
LAST-MODIFIED:20250626T204047Z
UID:4400-1762455600-1762458300@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting-6/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251002T190000
DTEND;TZID=America/New_York:20251002T194500
DTSTAMP:20250626T204047Z
CREATED:20250626T204047Z
LAST-MODIFIED:20250626T204047Z
UID:4399-1759431600-1759434300@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting-5/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250904T190000
DTEND;TZID=America/New_York:20250904T194500
DTSTAMP:20250906T021833Z
CREATED:20250626T204047Z
LAST-MODIFIED:20250906T021833Z
UID:4398-1757012400-1757015100@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:Below is a summary of what was discussed at the meeting. Teen Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryDownload\n\n\n\nQuick recap\n\n\n\nThe meeting focused on sharing experiences of stroke survivors and their recovery journeys\, with participants discussing their personal challenges and adaptations to life after significant changes. The group explored various aspects of recovery\, including physical therapy\, speech therapy\, and the importance of using accommodations and assistive technology to support individuals with disabilities. They also discussed educational and social experiences\, including participation in theater and sports programs\, while sharing insights about adapting to new roles and responsibilities within their families and communities. \n\n\n\nSummary\n\n\n\nStroke Recovery and Communication Journey\n\n\n\nLayli shared her experience of having a stroke at age 24\, which led to a two-year intensive recovery period where she couldn’t speak\, eat\, or walk properly. She is now in her fourth or fifth year of recovery\, during which she has been engaging more with the outside world. Layli described her speech as abnormal due to dysarthria\, a condition affecting the coordination of speaking muscles\, and explained that she has undergone speech therapy and used an EMST device to improve her communication skills. \n\n\n\nAdapting to Life After Change\n\n\n\nLayli discussed her personal journey of adapting to life after a significant change\, initially focusing on physical recovery and speech in the first two years. She described the challenges of finding her new rhythm in society\, which was not very accepting of diverse abilities. Layli shared that she had to adapt to a “new normal” by finding alternative activities that provided a sense of fulfillment\, such as just going to the starting point of a trail because she could no longer hike. She emphasized the emotional toll of striving for her old life\, which was no longer feasible\, and her acceptance of her current situation. \n\n\n\nStroke Recovery Journey\n\n\n\nLayli discussed her journey and recovery with Myla\, who had a stroke during her sophomore year of high school. Myla was out of school until March and faced challenges returning to her studies. Layli commended Myla for her resilience and perseverance during her recovery.  \n\n\n\nLayli shared her own experience of stroke recovery\, emphasizing that younger patients often have more potential to regain abilities due to their brain’s capacity to recover\, and encouraged Myla not to give up despite discouraging comments from doctors. Myla\, now in 12th grade\, expressed her determination to continue working on her recovery. \n\n\n\nSupporting Disabilities with Accommodations\n\n\n\nThe group discussed the challenges faced by individuals with cognitive and physical deficits\, particularly in processing information and communicating. Susan and Layli emphasized the importance of using available accommodations\, such as assistive technology\, to support those with disabilities. McKayla mentioned receiving some accommodations at school\, and Layli encouraged her to fully utilize them. The conversation highlighted the need for understanding and support in helping individuals with disabilities thrive academically and professionally. \n\n\n\nClass Discussions and Student Roles\n\n\n\nThe group discussed McKayla’s proximity to the board in class and her father’s help with her math studies\, which she finds challenging. Nate\, another stroke survivor\, shared that as a personal trainer\, he doesn’t use much math in his work\, though he took one statistics class in college. The conversation shifted to Myla’s current courses\, including theater\, choir\, English\, and anatomy\, with Layli expressing admiration for theater classes. Myla mentioned her role as a senior in directing and helping new theater students\, which Susan and Layli praised for its educational value and potential for developing empathetic skills. \n\n\n\nSibling Experiences and Locations\n\n\n\nThe group discussed their experiences with younger siblings\, with McKayla mentioning her two brothers aged 4.5 and 5.5\, and Layli shared that she has experience with children that age since her 5-year-old cousin recently moved in with her. Nate shared that he was at Ocean City\, MD at the beach\, and pursuing an online master’s degree at the University of Maryland. The conversation concluded with a brief discussion about the geographical locations of the participants\, with Layli confirming she was in California\, McKayla mentioned Ohio\, Myla is in Virginia\, and Susan and Nate were in Maryland. \n\n\n\nAdaptive Sports and Community Programs\n\n\n\nThe group discussed adaptive sports and community programs\, with Layli sharing her experiences in adaptive surfing and theater. Susan shared a story about her involvement in adaptive golfing for a child with a disability. The conversation touched on home modifications for accessibility\, including bathtub handrails and shower chairs. The conversation ended with Layli offering her phone number for further questions and support.
URL:https://circleofrights.org/event/teen-stroke-group-meeting-4/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250807T190000
DTEND;TZID=America/New_York:20250807T200000
DTSTAMP:20250809T155715Z
CREATED:20250626T204047Z
LAST-MODIFIED:20250809T155715Z
UID:4397-1754593200-1754596800@circleofrights.org
SUMMARY:TSG: Nate's Story
DESCRIPTION:Below is a summary of what was discussed at the meeting. Teen Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the Slack channel. \n\n\n\nPrintable Version of Meeting SummaryDownload\n\n\n\nQuick recap\n\n\n\nNate\, a 27-year-old personal trainer who had a stroke at age 13 affecting his right side mobility and speech\, shared his recovery journey and how he adapted to pursue education in exercise science and public health despite ongoing physical limitations. The group discussion included Crystal sharing about her daughter McKayla who recently had a stroke during a parade\, with both families discussing the challenges of rehabilitation and returning to normal activities. Nate offered insights about his experiences with anxiety\, driving adaptations\, and rehabilitation strategies\, while emphasizing the importance of pushing through recovery exercises and finding ways to adapt to limitations. \n\n\n\nSummary\n\n\n\nYoung Stroke Survivors Support Group\n\n\n\nNate introduces himself to the group as a 27-year-old who had a stroke at age 13. Crystal shares that McKayla is feeling anxious because she scratched part of her surgical scar on her head\, while Derek mentions his son is currently in 18 hours of therapy per week. \n\n\n\nTeenage Stroke Survivor’s Recovery Journey\n\n\n\nNate shares his experience of having a stroke in his left MCA affecting the Broca’s area of his brain when he was 13 years old in 8th grade\, which took away his right side mobility and ability to speak. He describes the onset during gym class\, his collapse on the field\, and being airlifted to Children’s Hospital in DC after initially being taken to Shady Grove Hospital. Nate explains his rehabilitation journey\, attending physical\, occupational\, and speech therapy daily for five months\, during which he made gradual improvements\, and eventually returning to school with assistive devices including an ankle-foot orthotic (AFO). \n\n\n\nPersonal Trainer’s Stroke Recovery Journey\n\n\n\nNate shares that he is a personal trainer who owns his own business despite having had a cryptogenic stroke in his left middle cerebral artery\, which affected the right side of his body. He explains that his arm remains the most affected area\, with limited mobility and some nerve pain\, while his foot has recovered better\, noting that larger muscles typically recover first after a stroke. Nate demonstrates his current limitations\, showing how he can partially raise his arm but struggles to fully open his hand without assistance. \n\n\n\nStroke Recovery Experiences and Rehabilitation\n\n\n\nCrystal shares that McKayla had a stroke on March 17th while baton twirling in a Saint Patrick’s Day parade\, and was taken to the ER afterward. Nate discusses his recovery after his stroke at age 27\, focusing on learning to play soccer with his left foot since his right foot was affected. He also mentions using a TENS unit for rehabilitation 3-4 times a week for about 15-20 minutes at a time\, acknowledging the difficulty of relearning basic movements like opening his hand. \n\n\n\nNate’s Athletic Journey and Career\n\n\n\nNate explains how he adapted his soccer playing style after his injury by focusing on positioning rather than running. He also tried weightlifting in high school\, which he practiced five days a week and eventually led to his career as a personal trainer. Nate shares that he pursued a bachelor’s degree in exercise science\, despite initially thinking it wouldn’t involve much science or math\, and is now working on a master’s degree in public health with a concentration in physical activity at UMD. \n\n\n\nPost-Stroke Identity and School Adjustments\n\n\n\nNate shares that after his stroke\, he experienced significant anxiety but not depression\, particularly feeling self-conscious about his changed gait and worried that others would immediately identify him as a stroke survivor. He mentions that his personality became more closed off for several years\, especially when he realized the long-term implications of his stroke as he approached college. Crystal discusses her daughter McKayla’s situation\, noting that while McKayla is comfortable mentioning her brain surgery\, her friends don’t understand what a stroke is but likely notice changes in her. Crystal explains that she had McKayla return to school part-time for the final five weeks of the school year to secure an individualized education program (IEP)\, as McKayla was previously a high-performing student. \n\n\n\nStroke Recovery and Encouragement\n\n\n\nNate shares his experience of having a stroke at a young age\, explaining that while his speech and physical abilities were affected\, his mind remained sharp. He discusses how the stroke made him seem more mature for his age\, which he uses to make better decisions. Crystal mentions that her daughter McKayla is trying to return to baton twirling\, which requires using both sides of the body\, presenting a challenge for Nate who has limited use of one side. Nate encourages McKayla\, acknowledging the difficulty of her situation but assuring her that things will improve over time. \n\n\n\nPost-Stroke Recovery and Adaptation\n\n\n\nNate shares his experience with driving after a stroke\, explaining how he made it a mission to continue driving despite challenges\, even choosing a manual car. When asked what he wishes his parents had done differently\, Nate mentions he wishes he had been pushed harder with physical therapy and exercises during the critical first six months of recovery\, though he acknowledges the difficulty in balancing pushing a child who has just had a stroke. He also discusses how his aphasia affected his reading and writing abilities for about three years after his stroke\, but eventually his interest in reading returned\, particularly with fantasy and sci-fi books that helped him escape negative feelings.
URL:https://circleofrights.org/event/teen-stroke-group-meeting-3/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250703T190000
DTEND;TZID=America/New_York:20250703T200000
DTSTAMP:20250704T162725Z
CREATED:20250626T204047Z
LAST-MODIFIED:20250704T162725Z
UID:4396-1751569200-1751572800@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting-2/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250605T190000
DTEND;TZID=America/New_York:20250605T200000
DTSTAMP:20250624T154115Z
CREATED:20250624T154115Z
LAST-MODIFIED:20250624T154115Z
UID:4028-1749150000-1749153600@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
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