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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260428T191500
DTEND;TZID=America/New_York:20260428T201500
DTSTAMP:20260619T141228
CREATED:20260327T181645Z
LAST-MODIFIED:20260327T181648Z
UID:5827-1777403700-1777407300@circleofrights.org
SUMMARY:Young Stroke Group: Adaptive Sports
DESCRIPTION:Schedule: \n\n\n\n\n7:15-7:30 Free time for casual conversation & peer support\n\n\n\n7:30-7:55 Meeting topic presentation\n\n\n\n7:55-8:15 Questions and answers\n\n\n\n\nIf you are not a Young Stroke Group member\, please register for stroke support services and you will be sent an email with the link to join the meeting on Zoom
URL:https://circleofrights.org/event/ysg-adaptive-sports/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260421T191500
DTEND;TZID=America/New_York:20260421T201500
DTSTAMP:20260619T141228
CREATED:20260327T181553Z
LAST-MODIFIED:20260327T181558Z
UID:5826-1776798900-1776802500@circleofrights.org
SUMMARY:Young Stroke Group: Lifestyle Medicine Challenge
DESCRIPTION:Schedule: \n\n\n\n\n7:15-7:30 Free time for casual conversation & peer support\n\n\n\n7:30-7:55 Meeting topic presentation\n\n\n\n7:55-8:15 Questions and answers\n\n\n\n\nIf you are not a Young Stroke Group member\, please register for stroke support services and you will be sent an email with the link to join the meeting on Zoom
URL:https://circleofrights.org/event/ysg-lifestyle-medicine-challenge/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260414T191500
DTEND;TZID=America/New_York:20260414T201500
DTSTAMP:20260619T141228
CREATED:20260327T181445Z
LAST-MODIFIED:20260327T181448Z
UID:5825-1776194100-1776197700@circleofrights.org
SUMMARY:Young Stroke Group: Rehab Based on Symptoms
DESCRIPTION:Schedule: \n\n\n\n\n7:15-7:30 Free time for casual conversation & peer support\n\n\n\n7:30-7:55 Meeting topic presentation\n\n\n\n7:55-8:15 Questions and answers\n\n\n\n\nIf you are not a Young Stroke Group member\, please register for stroke support services and you will be sent an email with the link to join the meeting on Zoom
URL:https://circleofrights.org/event/ysg-rehab-based-on-symptoms/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260407T191500
DTEND;TZID=America/New_York:20260407T201500
DTSTAMP:20260619T141228
CREATED:20260327T181234Z
LAST-MODIFIED:20260327T181302Z
UID:5824-1775589300-1775592900@circleofrights.org
SUMMARY:Young Stroke Group: Rehabilitation Psychology; Building Coping Skills
DESCRIPTION:Rehabilitation Psychologist Anna Agranovich from Johns Hopkins University will help us to build coping skills for depression and anxiety. \n\n\n\nSchedule: \n\n\n\n\n7:15-7:30 Free time for casual conversation & peer support\n\n\n\n7:30-7:55 Meeting topic presentation\n\n\n\n7:55-8:15 Questions and answers\n\n\n\n\nIf you are not a Young Stroke Group member\, please register for stroke support services and you will be sent an email with the link to join the meeting on Zoom
URL:https://circleofrights.org/event/ysg-rehabilitation-psychology-building-coping-skills/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260402T190000
DTEND;TZID=America/New_York:20260402T200000
DTSTAMP:20260619T141228
CREATED:20260508T024814Z
LAST-MODIFIED:20260508T024835Z
UID:5894-1775156400-1775160000@circleofrights.org
SUMMARY:Teen Stroke Group: Mini-Stroke Resolution Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/tsg-careers-for-stroke-survivors-2/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260331T191500
DTEND;TZID=America/New_York:20260331T201500
DTSTAMP:20260619T141228
CREATED:20260203T172633Z
LAST-MODIFIED:20260219T011751Z
UID:5698-1774984500-1774988100@circleofrights.org
SUMMARY:Young Stroke Group: Calendars and Alarms
DESCRIPTION:Elena Fishkin from Inova – Mount Vernon Hospital is a Speech Language Pathologist who has agreed to speak on the best ways for us to use electronic calendars and alarms. \n\n\n\nSchedule: \n\n\n\n\n7:15-7:30 Free time for casual conversation & peer support\n\n\n\n7:30-7:55 Meeting topic presentation\n\n\n\n7:55-8:15 Questions and answers\n\n\n\n\nIf you are not a Young Stroke Group member\, please register for stroke support services and you will be sent an email with the link to join the meeting on Zoom
URL:https://circleofrights.org/event/ysg-calendars-and-alarms/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260329T193000
DTEND;TZID=America/New_York:20260329T201500
DTSTAMP:20260619T141228
CREATED:20260116T173653Z
LAST-MODIFIED:20260326T175902Z
UID:5620-1774812600-1774815300@circleofrights.org
SUMMARY:Book Club: My Husband's Wife by Alice Feeney
DESCRIPTION:
URL:https://circleofrights.org/event/book-club-my-husbands-wife/
LOCATION:Zoom
CATEGORIES:Book Club,Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260324T191500
DTEND;TZID=America/New_York:20260324T201500
DTSTAMP:20260619T141228
CREATED:20260203T172632Z
LAST-MODIFIED:20260516T170712Z
UID:5697-1774379700-1774383300@circleofrights.org
SUMMARY:Young Stroke Group: Mental Health First Aid
DESCRIPTION:Mental Health First Aid is a course that teaches you how to identify\, understand and respond to signs of mental illnesses and substance use disorders. Julie Cook from Sheppard Pratt Hospital in Baltimore gave us an introduction to this course. 32 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\n \n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nQuick recap\n\n\n\nThis meeting was a stroke survivor support group session where Julie Cook\, Director of Training at Shepherd Pratt Hospital\, presented on Mental Health First Aid. Julie explained that the program teaches participants how to recognize and respond to mental health and substance use challenges through a 5-step ALGEE action plan covering assessment\, listening\, giving reassurance\, encouraging professional help\, and encouraging self-help. She detailed that the training consists of 2 hours of self-paced pre-work followed by 6 hours of instructor-led sessions\, and is currently free in Maryland through a SAMHSA grant. The discussion included personal stories from participants about stroke recovery and mental health challenges\, with Shelli seeking advice on how to approach a family member showing early signs of mental health issues. \n\n\n\nSummary\n\n\n\nMental Health First Aid Overview\n\n\n\nJulie presented an overview of the Mental Health First Aid training program\, which consists of a 2-hour self-paced online module followed by 6 hours of instructor-led sessions typically spread across two days. The training covers a 5-step action plan (ALGEE) for assisting individuals experiencing mental health crises\, including recognizing early warning signs\, suicidal thoughts\, and aggressive behaviors. The program is currently funded by a SAMHSA grant in Maryland\, covering participant costs\, and has trained over 700 people in the past year alone. \n\n\n\nEarly Health Intervention and Treatment\n\n\n\nJulie shared a statistic about the 11-year delay in adults seeking help for health issues in the United States and emphasized the importance of early recognition and intervention for better recovery outcomes. \n\n\n\nMental Health First Aid Training\n\n\n\nJulie presented on mental health first aid training\, explaining that a 6-hour course is available free in Maryland through a grant\, though she noted similar programs typically cost $169-179 elsewhere. She advised on how to approach conversations with someone showing mental health signs\, recommending using “I” statements to express concern and encouraging them to talk to someone\, while also suggesting the 988 crisis line as a resource. The group discussed practical aspects of the training\, including its online pre-work component and certification\, with Shelli seeking specific advice for handling a family member’s potential mental health issues.
URL:https://circleofrights.org/event/ysg-mental-health-first-aid/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260317T191500
DTEND;TZID=America/New_York:20260317T201500
DTSTAMP:20260619T141228
CREATED:20260203T172631Z
LAST-MODIFIED:20260219T011106Z
UID:5696-1773774900-1773778500@circleofrights.org
SUMMARY:Young Stroke Group: Music Therapy for Depression
DESCRIPTION:Schedule: \n\n\n\n\n7:15-7:30 Free time for casual conversation & peer support\n\n\n\n7:30-7:55 Meeting topic presentation\n\n\n\n7:55-8:15 Questions and answers\n\n\n\n\nIf you are not a Young Stroke Group member\, please register for stroke support services and you will be sent an email with the link to join the meeting on Zoom.
URL:https://circleofrights.org/event/ysg-music-therapy-for-depression/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260310T191500
DTEND;TZID=America/New_York:20260310T201500
DTSTAMP:20260619T141228
CREATED:20260203T172202Z
LAST-MODIFIED:20260315T192057Z
UID:5693-1773170100-1773173700@circleofrights.org
SUMMARY:Young Stroke Group: Mindfulness Hour with McKayla's Mom
DESCRIPTION:Chrystal Gerson is the mom of 12-year-old stroke survivor McKayla. She is a high school counselor with special training in trauma. She directed a Mindfulness Hour meeting\, covering stress management and anxiety techniques. 16 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nMeeting SummaryDownload\n\n\n\n \n\n\n\nQuick recap\n\n\n\nThis meeting was a Mindfulness Hour session focused on stress management and anxiety techniques for stroke survivors\, presented by Crystal Gerson\, an independently licensed social worker from Ohio. Crystal shared various techniques including vagus nerve stimulation exercises\, bilateral stimulation activities\, breathing exercises\, and guided meditation to help manage anxiety and depression symptoms post-stroke. She emphasized the importance of distinguishing between stroke-related symptoms and depression\, noting that both are valid experiences. The presentation included practical demonstrations of hand movements\, breathing techniques\, and art activities\, with special accommodations discussed for individuals with limited hand function. Crystal also shared resources for finding EMDR therapists and additional mental health support. \n\n\n\nSummary\n\n\n\nMindfulness Hour Session Introduction\n\n\n\nThe meeting began with Susan announcing her absence and delegating responsibilities to Nicole for facilitation and Michelle for chat reporting. Crystal confirmed the screen sharing setup\, and the group engaged in casual conversation about food\, weather\, and Kel’s recent medical update regarding her sinus fracture\, which appears to be healing without surgery. The meeting officially started with Crystal introducing the Mindfulness Hour\, taught by Crystal Gerson\, and welcoming participants. \n\n\n\nMindfulness Training and Anxiety Management\n\n\n\nCrystal facilitated a mindfulness training session\, which was the main focus of the meeting. Nicole served as the facilitator in Sherry’s absence\, and Michelle was responsible for reporting questions in the chat. The meeting was introduced by Dinithi\, and participants discussed various technical issues related to audio and video connections. The session was organized by Crystal\, who planned to share anxiety management and stress techniques with the attendees. \n\n\n\nStress Management Post-Stroke Recovery\n\n\n\nCrystal\, an independent licensed social worker\, presented on stress management techniques and anxiety\, particularly in the context of post-stroke recovery. She shared symptoms of stress and depression\, emphasizing the importance of distinguishing between stroke-related fatigue and depression. Crystal introduced exercises to stimulate the vagus nerve and promote relaxation\, including eye movements and breathing techniques\, and highlighted the role of mindfulness in managing anxiety. She also discussed the significance of recognizing and addressing mental health concerns post-stroke\, emphasizing that seeking help is not a sign of weakness. \n\n\n\nBilateral Stimulation for Anxiety Management\n\n\n\nCrystal presented on various bilateral stimulation techniques for managing anxiety and stress\, including butterfly tapping\, guided imagery\, and bilateral art exercises. She explained how these activities can help regulate the brain and improve mental clarity. Crystal also shared resources for depression and trauma support for stroke survivors. The group discussed adaptations for individuals with limited hand use\, including visualization techniques and EMDR light bar apps. Crystal agreed to share her presentation in the Slack app. Nicole announced the next meeting would focus on music therapy for depression\, presented by Preeti Regvan.
URL:https://circleofrights.org/event/ysg-mindfulness-hour-with-mckaylas-mom/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260303T191500
DTEND;TZID=America/New_York:20260303T201500
DTSTAMP:20260619T141228
CREATED:20260203T172201Z
LAST-MODIFIED:20260315T192752Z
UID:5692-1772565300-1772568900@circleofrights.org
SUMMARY:Young Stroke Group: Benefits of Positive Lifestyle Behaviors
DESCRIPTION:Dr. Damaschke\, the director of Lifestyle Medicine at Rosalind Franklin University in IL\, presented an introduction to lifestyle medicine and its six pillars for preventing and treating chronic diseases. He explained the difference between sick care and healthcare approaches\, such as nutrition\, physical activity\, stress management\, and connectedness\, while emphasizing that small lifestyle changes can have significant health benefits. See About Lifestyle Medicine. 25 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nMeeting SummaryDownload\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nLifestyle Medicine Presentation Download
URL:https://circleofrights.org/event/ysg-benefits-of-positive-lifestyle-behaviors/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260225T193000
DTEND;TZID=America/New_York:20260225T201500
DTSTAMP:20260619T141228
CREATED:20260114T115655Z
LAST-MODIFIED:20260116T173718Z
UID:5579-1772047800-1772050500@circleofrights.org
SUMMARY:Book Club: The Seven Husbands of Evelyn Hugo by Taylor Jenkins Reid
DESCRIPTION:
URL:https://circleofrights.org/event/book-club-the-seven-husbands-of-evelyn-hugo/
LOCATION:Zoom
CATEGORIES:Book Club,Support Groups
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260224T191500
DTEND;TZID=America/New_York:20260224T201500
DTSTAMP:20260619T141228
CREATED:20260203T171631Z
LAST-MODIFIED:20260219T011237Z
UID:5689-1771960500-1771964100@circleofrights.org
SUMMARY:Young Stroke Group: Neuropsychologist from India
DESCRIPTION:Dr. Charumati Raghavan\, a neuropsychologist from India\, will be telling us about her profession and her interests.  \n\n\n\nSchedule: \n\n\n\n\n7:15-7:30 Free time for casual conversation & peer support\n\n\n\n7:30-7:55 Meeting topic presentation\n\n\n\n7:55-8:15 Questions and answers\n\n\n\n\nIf you are not a Young Stroke Group member\, please register for stroke support services and you will be sent an email with the link to join the meeting on Zoom.
URL:https://circleofrights.org/event/ysg-neuropsychologist-from-india/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T191500
DTEND;TZID=America/New_York:20260217T201500
DTSTAMP:20260619T141228
CREATED:20260114T203756Z
LAST-MODIFIED:20260219T003859Z
UID:5611-1771355700-1771359300@circleofrights.org
SUMMARY:YSG: Discuss particular conditions and medications\, side effects\, ...
DESCRIPTION:Dr. Cimo Chen\, NIH epidemiology\, discussed conditions\, medications\, and side effects. 25 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nMeeting SummaryDownload\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nMedications & Stroke Recovery:What We Need to KnowDownload\n\n\n\nParticular conditions\, medications and side effects \n\n\n\nQuick recap\n\n\n\nThe meeting focused on a presentation by Dr. Cimo Chen about medication management and side effects for stroke survivors. Dr. Chen shared information on reading prescription labels\, understanding medication interactions\, and using an online tool to check drug side effects and interactions. She emphasized the importance of communicating with healthcare providers about medications and monitoring for potential side effects. The group discussed various medications\, including blood thinners\, blood pressure drugs\, and antidepressants\, and how to safely manage them. Dr. Chen also demonstrated a medication analysis tool that provides detailed information on drug side effects and interactions. \n\n\n\nSummary\n\n\n\nStroke Care and Medication Management\n\n\n\nThe meeting began with Cimo Chen\, a physician epidemiologist\, joining the meeting to discuss medication management for stroke survivors. She explained how to read prescription labels\, the importance of reviewing all medications with healthcare providers\, and the benefits and side effects of various medications commonly prescribed to stroke survivors\, including antidepressants\, blood thinners\, statins\, and blood pressure medications. The conversation ended with a brief discussion about hormonal therapies and vitamin supplements for stroke survivors. \n\n\n\nMedication Management for Stroke Survivors\n\n\n\nCimo discussed medication management for stroke survivors\, emphasizing the importance of monitoring side effects and working with healthcare providers to adjust treatments as needed. She highlighted the role of pharmacists as safety nets and encouraged patients to ask questions about their medications. Cimo also demonstrated an online tool she developed to help patients understand medication side effects and interactions. The group discussed challenges with managing multiple medications and the importance of communication between different healthcare providers. \n\n\n\nDrug Interaction Database Overview\n\n\n\nDr. Chen presented on medication interactions and side effects\, demonstrating a database tool that provides real-time information on drug interactions\, side effects\, and warnings. She explained how to use the tool\, which requires login for detailed age/sex-specific data but is publicly accessible for general information. The discussion covered specific medications like Eliquis and Amlodipine\, with participants sharing their experiences and questions about side effects. Dr. Chen emphasized that while certain medications may have manageable side effects in general\, individual reactions can vary significantly\, and patients should consult their doctors about specific concerns.
URL:https://circleofrights.org/event/ysg-discuss-particular-conditions-and-medications-side-effects/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T193000
DTEND;TZID=America/New_York:20260210T201500
DTSTAMP:20260619T141228
CREATED:20260114T203755Z
LAST-MODIFIED:20260203T171215Z
UID:5610-1770751800-1770754500@circleofrights.org
SUMMARY:YSG: Stroke Ressearch and Recovery
DESCRIPTION:
URL:https://circleofrights.org/event/ysg-stroke-ressearch-and-recovery/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260205T190000
DTEND;TZID=America/New_York:20260205T200000
DTSTAMP:20260619T141228
CREATED:20260116T170542Z
LAST-MODIFIED:20260116T170543Z
UID:5614-1770318000-1770321600@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting-feb26/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260203T193000
DTEND;TZID=America/New_York:20260203T201500
DTSTAMP:20260619T141228
CREATED:20260114T203448Z
LAST-MODIFIED:20260203T171317Z
UID:5606-1770147000-1770149700@circleofrights.org
SUMMARY:YSG: Neuroplasticity and the VNS Booster
DESCRIPTION:
URL:https://circleofrights.org/event/ysg-neuroplasticity-and-the-vns-booster/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260127T193000
DTEND;TZID=America/New_York:20260127T201500
DTSTAMP:20260619T141228
CREATED:20260114T203448Z
LAST-MODIFIED:20260203T172203Z
UID:5605-1769542200-1769544900@circleofrights.org
SUMMARY:YSG: Possible Volunteer Positions at Circle of Rights
DESCRIPTION:
URL:https://circleofrights.org/event/ysg-what-is-neuropsychology-how-can-it-help-stroke-survivors/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T193000
DTEND;TZID=America/New_York:20260120T201500
DTSTAMP:20260619T141228
CREATED:20260106T191645Z
LAST-MODIFIED:20260114T202843Z
UID:5549-1768937400-1768940100@circleofrights.org
SUMMARY:YSG: Headache
DESCRIPTION:
URL:https://circleofrights.org/event/ysg-headache/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260113T193000
DTEND;TZID=America/New_York:20260113T201500
DTSTAMP:20260619T141228
CREATED:20260106T191654Z
LAST-MODIFIED:20260219T005728Z
UID:5548-1768332600-1768335300@circleofrights.org
SUMMARY:YSG: MedRhythms InTandem
DESCRIPTION:Jeannine presented the MedRhythms InTandem device\, a FDA-approved medical device for walking rehabilitation after stroke that uses rhythmic auditory stimulation\, and discussed its functionality\, cost\, and insurance coverage. 24 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nMeeting SummaryView and Download\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nInTandem PresentationDownload\n\n\n\nQuick recap\n\n\n\nJeannine presented the MedRhythms InTandem device\, a FDA-approved medical device for walking rehabilitation after stroke that uses rhythmic auditory stimulation\, and discussed its functionality\, cost\, and insurance coverage. The conversation ended with discussions about the device’s practical applications. From Jeannine GreenBerg\, InTandem: jgreenberg@medrhythms.com 267-223-4891 \n\n\n\nSummary\n\n\n\nIntroduction\n\n\n\nJeannine\, a physical therapist with experience in neurorehabilitation\, was introduced as the guest speaker for the evening\, and Kimia provided an overview of her background and the topic she would discuss\, which was related to new technology for medical devices. \n\n\n\nInTandem Device for Stroke Rehabilitation\n\n\n\nJeannine introduced MedRhythms’ InTandem device\, a prescribed medical device for walking rehabilitation after stroke\, and explained its use of rhythmic auditory stimulation to improve walking. She discussed the device’s components\, functionality\, and the importance of music in treating walking impairments. Participants asked questions about insurance coverage\, accessibility for blind users\, and safety concerns for mobility-challenged individuals. Jeannine addressed these concerns\, noting that while Medicare has shown positive coverage for the device\, insurance coverage varies and is not guaranteed\, and she encouraged participants to follow up with their insurance providers. \n\n\n\nInTandem Device for Mobility Improvement\n\n\n\nThe meeting discussed the InTandem device\, a rhythmic auditory stimulation device designed to increase walking speed and mobility for individuals who walk independently. Jeannine explained that the device is FDA-approved and costs $5\,000 out-of-pocket if insurance does not cover it\, though Medicare often covers it. Michelle inquired about using the device for improving walking speed\, and Jeannine confirmed it can increase walking speed and works for walking speeds from 40 to 135 steps per minute. Participants also discussed the device’s code (E3200) and its potential coverage under commercial insurance\, with Jeannine suggesting that individuals can inquire with their insurance providers. \n\n\n\nFDA-Approved Gait Symmetry Device\n\n\n\nJeannine explained that the device is FDA approved and can be used for ambulatory individuals who walk at least 40 steps per minute. She described how the device adjusts music tempo based on walking speed and can help improve gait symmetry and balance. Kellee shared her positive experience with Medicare coverage for the device. Jeannine offered to provide prescription forms and insurance coverage information to interested participants. \n\n\n\nMed Rhythms for Stroke Recovery\n\n\n\nJeannine played a video of a user sharing her experience using Med Rhythms\, a device that helps improve gait through music and rhythm\, following a severe stroke. She emphasized its role in her recovery and highlighted that it is intended for home use\, Jeannine noted it can be used in physical therapy sessions if needed. Participants asked questions about the device’s use\, prescription process\, and durability\, with Jeannine providing clarity on these aspects.
URL:https://circleofrights.org/event/ysg-medrhythms-intandem/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
ATTACH;FMTTYPE=image/jpeg:https://circleofrights.org/wp-content/uploads/2026/01/medrhythms_intandem_kit_hand-1183575571.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260108T190000
DTEND;TZID=America/New_York:20260108T200000
DTSTAMP:20260619T141228
CREATED:20250626T204048Z
LAST-MODIFIED:20260119T154607Z
UID:4402-1767898800-1767902400@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:Below is a summary of what was discussed at the meeting. Teen Stroke Group Members can also access a recording. If you’d like to watch the replay\, please text Sue. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nQuick recap\n\n\n\nThe meeting focused on sharing experiences and challenges faced by young stroke survivors and their families. Participants\, including Susan (the facilitator)\, Crystal\, Jamie\, Donna\, and others\, discussed their personal stories\, the impact of strokes on daily life\, and the emotional and physical recovery processes. Crystal shared her daughter McKayla’s experience with a stroke during a parade\, leading to a diagnosis of Moyamoya disease and subsequent surgery. Jamie described her daughter Myla’s recovery journey after a hemorrhagic stroke\, highlighting ongoing challenges and the importance of regular medical monitoring. The group also discussed the role of caregivers\, with Tom Gallup introducing a nationwide brain injury caregiver support group and sharing resources. Susan outlined plans for future meetings\, including potential additional teen stroke groups and discussions on topics like prevention\, driving adaptations\, and bilateral exercises. The conversation ended with participants expressing support for one another and sharing practical tips for managing stroke-related challenges. \n\n\n\nSummary\n\n\n\nExercise Benefits for Learning and Brain Function\n\n\n\nThe group discussed the importance of exercise\, particularly before learning activities\, based on Nate’s presentation about a study from the Naperville 203 school district. Nate shared that students who exercised before school showed improved test scores and better attention spans\, leading to a recommendation for morning exercise. Several participants\, including Gabe and Myla\, mentioned their limited morning exercise routines\, while Dinithi noted her afternoon workouts and expressed interest in incorporating morning exercise. The discussion highlighted the potential benefits of exercise on brain function and recovery\, with Nate emphasizing its importance for both young people andstroke survivors. \n\n\n\nPersonal Stroke Experiences Shared\n\n\n\nThe group discussed personal experiences with strokes\, with Isabella sharing her story of having a stroke during a heart transplant operation that affected her right hand and speech. Myla described her experience with an AVM rupture two years ago\, which required skull removal surgery and initially left her unable to walk or speak. Gabe recounted his experience of waking up with a severe headache that led to hospitalization\, while Dinithi shared her story of having a brain cyst removed during her master’s program in neuroimaging informatics\, which affected her short-term memory. The discussion aimed to learn about different stroke experiences to help participants understand the condition better. \n\n\n\nSurvivor Stories and Caregiver Support\n\n\n\nThe meeting began with young stroke survivors sharing their experiences\, including Nate\, who described a severe headache incident in gym class that led to a stroke\, and Layli\, who had a stroke at 24 and is still recovering. Michelle shared her recent stroke experiences\, including three strokes\, and discussed her recovery process. Tom Gallup\, a stroke survivor and caregiver support group leader\, joined to discuss his ongoing involvement in brain injury advocacy and to invite the group to join his nationwide caregiver support group. The conversation ended with Gabe discussing his son’s October stroke and the challenges of navigating medical care and emotional recovery\, with Tom offering support and information about his caregiver group. \n\n\n\nSurviving Strokes: Personal Stories\n\n\n\nCrystal shared her daughter McKayla’s experience with a stroke caused by Moyamoya disease\, which occurred during a parade performance. Despite initial symptoms like vision problems\, McKayla’s stroke was not immediately recognized\, leading to emotional challenges for both McKayla and Crystal. Jamie discussed her daughter Myla’s recovery from a hemorrhagic stroke\, highlighting the ongoing physical and emotional challenges\, as well as the uncertainty of future strokes due to an undetermined cause. The group also discussed the importance of monitoring and support for stroke survivors\, with Layli offering resources for theater programs for individuals with brain injuries. \n\n\n\nTeen Stroke Support Meeting Planning\n\n\n\nThe group discussed goals and topics for upcoming young stroke survivor meetings\, including presentations on prevention versus repair\, hearing loss\, and driving adaptations. Crystal shared her expertise in EMDR therapy and bilateral activities for trauma recovery\, which she will present in March. Susan expressed interest in expanding teen stroke groups and exploring brain injury topics\, while also considering caregiver involvement. The conversation ended with Layli offering support to parents dealing with their children’s stroke experiences\, and Dinithi offering her email for further communication. \n\n\n\nCaregiver Challenges in Therapy Acceptance\n\n\n\nThe group discussed challenges faced by caregivers of children with disabilities\, particularly regarding therapy acceptance and balancing support. Crystal shared her daughter’s resistance to therapy while feeling the pressure to provide more help\, while Myla described similar struggles with her daughter McKayla\, who has reached a point of acceptance despite ongoing specialist recommendations. The discussion concluded with Susan announcing an upcoming presentation about “walking with music” technology\, scheduled for next Tuesday at 7:30 Eastern Time\, and noting that the company has shifted from county funding to seeking partnerships with device providers.
URL:https://circleofrights.org/event/teen-stroke-group-meeting-jan26/
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260106T193000
DTEND;TZID=America/New_York:20260106T201500
DTSTAMP:20260619T141228
CREATED:20260102T203718Z
LAST-MODIFIED:20260118T180036Z
UID:5537-1767727800-1767730500@circleofrights.org
SUMMARY:YSG: Stroke New Years Resolutions
DESCRIPTION:Below is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nStroke New Year’s Resolutions PresentationDownload\n\n\n\nQuick recap\n\n\n\nThe meeting focused on reviewing the Young Stroke Group’s 2025 activities and planning for 2026. Susan presented data on meeting categories from 2025 and discussed upcoming presentations for 2026\, including topics like headache\, neuropsychology\, and medication management. Members suggested additional topics such as nutrition\, accessible locations\, and a glossary of healthcare providers. Crystal shared her plans to present on bilateral exercises and music therapy. The group discussed the need for new partnerships and funding to support their activities. Susan emphasized the importance of volunteer positions and encouraged members to get involved in education and other roles. The conversation ended with a brief overview of the next presentation featuring Janine Greenberg\, who will discuss MedRhythms InTandem. \n\n\n\nStroke Leadership Council 2025 Categories\n\n\n\nThe meeting focused on reviewing the 2025 meeting categories for the Stroke Leadership Council\, which included eight categories such as stroke and brain health\, practical resources\, social connections\, and medication management. Susan noted that certain areas like medication management and nutrition needed more attention\, and she invited input from the group for potential speakers. Michelle offered to provide a contact for medication management expertise\, and the group discussed the need for more presentations on nutrition and healthy living. \n\n\n\nFuture Presentation Planning Discussion\n\n\n\nThe group discussed plans for future presentations and educational sessions. Michelle offered to organize a presentation with her boss\, who is a skilled presenter. Susan inquired about the content of upcoming sessions\, particularly regarding medication management. The group clarified the difference between presentations by healthcare professionals (middle four circles) and those by group members (practical resources and advice). Kimia mentioned that interviews with stroke survivors often provide valuable insights. Layli expressed interest in alternative therapies and clinical interventions\, noting that the group had already hosted five sessions on this topic. The group agreed to aim for more presentations on alternative therapies in the coming year. \n\n\n\nStroke Support Group Presentation Updates\n\n\n\nThe group discussed past and upcoming presentations for their stroke support group. Susan shared that recordings of past sessions are available through the website\, with full recordings available upon request. They reviewed upcoming presentations\, including one on headaches with Sherry\, and a neuropsychology session with Dr. Argonovich. McKayla mentioned she would be having neuropsych testing in April\, and the group discussed the purpose and benefits of neuropsych evaluations\, including identifying strengths\, gaps\, and potential accommodations in both school and work settings. \n\n\n\nStroke Education and Funding Planning\n\n\n\nThe meeting focused on planning educational sessions for stroke survivors\, with discussions about mental health\, adaptive sports\, and workplace accommodations. Susan announced that the organization would no longer receive county funding and was seeking partnerships with companies to generate revenue for future activities\, including a potential patient conference. Participants suggested topics for upcoming sessions\, including nutrition\, mental health\, and social connections\, with Yo offering to connect the group with a dietitian and lifestyle medicine expert. The group also discussed the need for volunteers in educational roles and planned to revisit the allocation of funds in a later meeting.
URL:https://circleofrights.org/event/ysg-stroke-new-years-resolutions/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
ATTACH;FMTTYPE=image/jpeg:https://circleofrights.org/wp-content/uploads/2026/01/COR-New-Years-resolutions.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251230T193000
DTEND;TZID=America/New_York:20251230T201500
DTSTAMP:20260619T141228
CREATED:20251031T142040Z
LAST-MODIFIED:20260203T172153Z
UID:5441-1767123000-1767125700@circleofrights.org
SUMMARY:YSG: End-of-Year Social Hour
DESCRIPTION:Below is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nQuick recap\n\n\n\nThe group held an informal meeting where members shared personal updates and discussed their experiences with strokes\, including recovery journeys and the impact on their lives. Members reflected on the importance of support and kindness from the group\, with several participants expressing gratitude for the community’s role in their recovery. The conversation ended with plans for the next session focused on New Year’s resolutions and discussions about living arrangements and age-inclusive support groups. \n\n\n\nSummary\n\n\n\nSupport and Recovery Updates\n\n\n\nThe group held an informal meeting to discuss personal updates and support each other. Kellee shared her medical challenges\, including a sinus fracture that requires surgery\, and received encouragement from the group. Lori\, a recent stroke survivor\, described her experience and the ongoing mystery of her stroke’s cause\, which led to a discussion about unknown stroke triggers. The group also celebrated Susan’s upcoming birthday and discussed the benefits of their support group\, with Rhonda expressing gratitude for the community’s impact on her recovery. \n\n\n\nStroke Recovery and Personal Growth\n\n\n\nThe group shared personal reflections on their experiences since joining\, with several members discussing their recovery journeys following strokes. Michelle revealed she had a stroke in June and was proud of her progress in accepting and discussing it\, while Lori and Josh shared how their strokes taught them the importance of asking for help and relying on others. The group discussed how these experiences have led to personal growth\, with members noting increased confidence in communicating their needs and a greater understanding of their own capabilities despite physical changes. Layli emphasized the value of unexpected kindness from group members in supporting mental health recovery. \n\n\n\nStroke Support Group Evolution\n\n\n\nThe group discussed the importance of listening and support\, with Lisa sharing her gratitude for Susan’s help after her stroke. Susan explained the history of the support group\, which began 18 years ago and evolved due to COVID-19\, leading to the creation of the current group. The members expressed appreciation for Susan’s efforts in supporting stroke survivors. \n\n\n\nPersonal Stroke Experiences and Insights\n\n\n\nThe group discussed personal experiences with strokes\, with Josh and Stephanie sharing that they had strokes after becoming parents\, though Stephanie clarified hers occurred six months after her son’s birth. The conversation explored how strokes have changed their perspectives and behaviors\, with Josh noting significant improvements in his anger management and patience. The discussion concluded with participants reflecting on recent acts of kindness and support from others\, with Layli highlighting the assistance she received from Lisa and Yeo. \n\n\n\nStroke Recovery and Support Stories\n\n\n\nThe group discussed acts of kindness and support they received after experiencing strokes. Josh shared how his wife Sarah helped him recover\, and Michelle expressed gratitude for Josh’s support during her recovery. The conversation touched on living arrangements\, with several members\, including Ciara and Layli\, discussing multi-generational households. Stephanie highlighted the value of age-inclusive support groups\, particularly noting the lack of such groups in her 30s.
URL:https://circleofrights.org/event/ysg-end-of-year-social-hour/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251223T193000
DTEND;TZID=America/New_York:20251223T201500
DTSTAMP:20260619T141228
CREATED:20251031T142041Z
LAST-MODIFIED:20260203T172153Z
UID:5442-1766518200-1766520900@circleofrights.org
SUMMARY:YSG: Going Back to Work
DESCRIPTION:Speaker: Yonara
URL:https://circleofrights.org/event/ysg-going-back-to-work/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T201500
DTEND;TZID=America/New_York:20251218T210000
DTSTAMP:20260619T141228
CREATED:20251215T172151Z
LAST-MODIFIED:20251215T172151Z
UID:5475-1766088900-1766091600@circleofrights.org
SUMMARY:Stroke Leadership Council
DESCRIPTION:
URL:https://circleofrights.org/event/stroke-leadership-council-3/
LOCATION:Zoom
CATEGORIES:Stroke Leadership Council
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251216T193000
DTEND;TZID=America/New_York:20251216T201500
DTSTAMP:20260619T141228
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172153Z
UID:4680-1765913400-1765916100@circleofrights.org
SUMMARY:YSG: Getting Ready for Winter
DESCRIPTION:Nicole’s presented about getting ready for winter. She shared strategies for managing cold weather challenges such as staying warm\, maintaining mobility\, and managing health concerns. 18 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nGetting Ready for Winter Presented by Nicole GulinoDownload\n\n\n\nYou can view the video that was included in the presentation on Tick Tock: \n\n\n\n\nWatch video\n\n\n\n\n \n\n\n\nQuick recap\n\n\n\nThe meeting focused on Nicole’s presentation about winter disability preparation\, where she shared strategies for managing cold weather challenges such as staying warm\, maintaining mobility\, and managing health concerns. The discussion covered specific tips for disabled individuals including vitamin intake\, exercise routines\, and safety precautions when walking in icy conditions. Participants shared personal experiences about flu shots and COVID vaccinations\, with some noting they experienced side effects while others reported no reactions. \n\n\n\nSummary\n\n\n\nWinter Disability Preparation Strategies\n\n\n\nNicole presented a slideshow on winter disability preparation\, discussing challenges like sleep issues\, slipping on ice\, seasonal depression\, and managing temperature. She suggested strategies such as maintaining adequate vitamin intake\, meal prepping\, and taking vitamins like D and B12\, as well as exercises like sit-to-stand with a ball between the legs to maintain flexibility and warmth during the winter months. \n\n\n\nWinter Safety for Stroke Survivors\n\n\n\nThe group discussed winter safety tips for stroke survivors\, with Nicole sharing her experience of feeling colder due to blood thinners and suggesting layering\, heated blankets\, and mobility aids with ice picks for walking in snow. Susan mentioned her personal challenge of maintaining proper blood flow and warmth on the stroke-affected side\, while Shelli inquired about the connection between blood thinners and cold sensitivity\, which was confirmed by Nicole and Yonara. The discussion concluded with suggestions for staying engaged through activism and maintaining safety during winter activities. \n\n\n\nWinter Safety and Health Tips\n\n\n\nNicole discussed winter safety tips for people with disabilities\, emphasizing the importance of having someone accompany them when going out\, being cautious of icy surfaces\, and learning how to fall safely. She advised on maintaining good physical and mental health through hydration\, sleep\, exercise\, and engaging in hobbies\, while also highlighting the need for proper hygiene\, especially during flu season. Nicole concluded by encouraging participants to maintain their routines during the holidays to stay grounded and healthy. \n\n\n\nWinter Safety for Stroke Survivors\n\n\n\nThe group discussed winter safety tips for stroke survivors\, including using a cane\, wearing insulated clothing\, and sitting on padded envelopes to stay warm. Kellee shared her experience with seasonal affective disorder and using artificial light therapy. Michelle inquired about flu shot experiences and noted that stroke survivors may need to be more cautious during winter due to potential dizziness and gait issues. \n\n\n\nVaccination Safety and Recovery Tips\n\n\n\nThe group discussed the importance of getting flu and COVID-19 vaccinations\, with several members sharing their experiences and recommendations. Layli highlighted the need for extra caution when walking due to potential balance issues post-stroke. Roo suggested timing vaccinations for weekends to allow recovery time and recommended hydration before and after shots.
URL:https://circleofrights.org/event/ysg-getting-ready-for-winter/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T193000
DTEND;TZID=America/New_York:20251209T201500
DTSTAMP:20260619T141228
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172153Z
UID:4669-1765308600-1765311300@circleofrights.org
SUMMARY:YSG: Eye Issues\, Exercises
DESCRIPTION:Kimia led the discussion on visual disturbances that can occur after a stroke. 15 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nVisual Disturbances Post-Stroke Presented by Kimia Dasteh GoliDownload\n\n\n\nQuick recap\n\n\n\nThe meeting’s main focus was on stroke-related visual disturbances\, where participants shared their experiences with various vision problems and discussed the importance of considering eye issues in stroke survivors. The group also addressed challenges in accessing specialists and the coordination of care between different medical specialists after a stroke. \n\n\n\nSummary\n\n\n\nPost-Stroke Visual Disturbance Management\n\n\n\nThe meeting focused on visual disturbances that can occur after a stroke\, with Kimia leading the discussion. She explained that stroke can affect parts of the brain controlling vision\, eye movement\, and visual understanding\, with studies showing two-thirds of stroke survivors experience some type of vision problem. Participants shared their experiences\, including Kellee who lost peripheral vision in her left eye and Michelle who experienced visual field loss and dizziness. The group discussed various eye exams and treatments they had undergone\, including visits to ophthalmologists\, neuro-ophthalmologists\, and vision therapists. Kimia presented common vision problems after stroke\, such as visual field loss\, eye movement issues\, and visual processing changes\, and the group discussed how these symptoms can impact daily activities and require ongoing management. \n\n\n\nStroke Symptoms and Vision Impact\n\n\n\nThe group discussed various symptoms associated with strokes\, including vision problems\, dry eye syndrome\, and light sensitivity. Lisa shared her experience of losing a quarter of her vision after a TIA and a full stroke\, but she did not notice the vision loss. Kimia emphasized the importance of considering eye problems in stroke survivors\, as symptoms may not always be apparent. Stephanie asked about the relationship between stroke-related symptoms and neuro-ophthalmology\, and Kimia explained that while some symptoms may be directly related to eye issues\, others could be due to broader neurological impacts. \n\n\n\nVisual Phenomena and Stroke Connections\n\n\n\nThe group discussed various visual phenomena and their potential connection to strokes\, including light sensitivity and migraines. Kimia explained that positive visual phenomena\, such as flashes of light or shimmering patterns\, can be a precursor to another stroke\, particularly if it occurs in the thalamic or occipital regions. Stephanie inquired about specialists for stroke-related headaches\, and Susan suggested looking into vascular neurologists\, though she was unsure if there was a specific specialist for stroke and migraine combination. \n\n\n\nSpecialist Access Challenges Discussion\n\n\n\nThe group discussed challenges with accessing specialists\, particularly for conditions like stroke and neuro-ophthalmology. Michelle shared her experience of a long wait for an appointment and suggested that having a neurologist refer patients as stroke-related could expedite the process. Stephanie expressed frustration with the complexity and lack of communication among specialists\, while Kimia explained that insurance restrictions often require patients to see a primary specialist before being referred to a higher-level specialist\, causing delays. Susan proposed leveraging her position as the group head to potentially expedite access to specialists and mentioned plans to discuss winter-related health measures in the next meeting. \n\n\n\nStroke Care Coordination Challenges\n\n\n\nThe group discussed the challenges of coordinating care between different medical specialists after a stroke\, particularly regarding the intersection between neurological and ENT issues. Stephanie shared her experience with multiple specialists including neurologists\, ENTs\, and neuro-ophthalmologists\, while Kimia explained that the limited number of neuro-ENT specialists makes coordination difficult. The discussion highlighted how the U.S. healthcare system often separates specialists rather than integrating their expertise\, and concluded with Kimia’s recommendation that patients should bring their full medical history to each appointment to educate their doctors about their stroke-related conditions.
URL:https://circleofrights.org/event/ysg-eye-issues-exercises-2/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T190000
DTEND;TZID=America/New_York:20251204T194500
DTSTAMP:20260619T141228
CREATED:20250626T204048Z
LAST-MODIFIED:20260116T170543Z
UID:4401-1764874800-1764877500@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting-dec25/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251202T193000
DTEND;TZID=America/New_York:20251202T201500
DTSTAMP:20260619T141228
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172153Z
UID:4668-1764703800-1764706500@circleofrights.org
SUMMARY:YSG Jeopardy: Reminders on Proprioception\, Spasticity\, Fatigue Management\, Music\, Attention Difficulties\, and Physiatry
DESCRIPTION:Kimia and Layli organized a Jeopardy-style meeting where members answered trivia questions for points. 19 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nQuick recap\n\n\n\nKimia and Layli organized a Jeopardy-style meeting where participants answered medical trivia questions for points\, with Kimia managing participant engagement and Layli serving as scorekeeper and timekeeper. The game involved multiple rounds covering cardiovascular and neurological conditions\, medications\, and related terms\, with participants helping each other and sharing knowledge throughout the session. The conversation ended with participants expressing interest in playing again\, and all participants having the opportunity to participate in the game. \n\n\n\nSummary\n\n\n\nJeopardy-Style Meeting Logistics\n\n\n\nKimia and Layli organized a Jeopardy-style meeting\, noting that Stu was absent due to illness. They discussed logistics\, including keeping track of participants’ points using an Excel sheet and ensuring everyone had a turn to speak by calling on them alphabetically. Layli confirmed she would act as the scorekeeper and timekeeper\, while Kimia would manage participant engagement. The meeting was set to begin five minutes later\, and Kimia mentioned she and Layli had reviewed the questions. \n\n\n\nJeopardy-Style Game Session\n\n\n\nThe meeting began with Kimia explaining the rules of a Jeopardy-style game\, where participants would select categories and answer questions for points. Layli described the game mechanics\, including the option to phone a friend and the point distribution. As the game progressed\, participants took turns answering questions\, with some receiving help from others. The session was recorded\, and Kimia and Layli managed the game\, keeping track of scores and providing assistance when needed. \n\n\n\nMedical Trivia Game Session\n\n\n\nThe group played a medical trivia game where participants answered questions about hypertension\, blood thinners\, cardiovascular disease\, and strokes. The game involved multiple rounds where players could earn points by answering questions about various medical conditions and concepts. Participants helped each other with answers and discussed terms like coronary artery disease and COPD. \n\n\n\nMedical Trivia Game Session\n\n\n\nThe group played a game where participants took turns answering medical-related questions for points. Kimia\, Jeffrey\, and Layli discussed splitting points after Jeffrey received a hint from Kelly. Rhonda asked about stroke signs and symptoms\, which the group confirmed was correct. Emilio chose to answer a question about the heart\, which he successfully answered. Michelle chose the “OTHER” category for $500 and correctly answered a question about neuroplasticity related to language skills. The game continued with Stephanie choosing to answer a question about the heart for $500. \n\n\n\nMedical Trivia Game Session\n\n\n\nThe meeting involved a game where participants answered medical questions to earn points. Kimia led the game\, ensuring everyone had a chance to answer\, and participants discussed topics such as types of strokes\, heart chambers\, and cardiovascular conditions. Brendan shared his recent experience with strokes\, and Gordon\, who was participating remotely\, successfully answered a question about a common name for a septal defect. The session concluded with Layli confirming that all participants had a chance to participate. \n\n\n\nMedical Trivia Game Session\n\n\n\nThe group played a medical trivia game where participants took turns answering questions about cardiovascular and neurological conditions\, medications\, and related terms. The questions ranged from $100 to $500 in value\, with topics including statins\, proprioception\, spasticity\, and arrhythmia. Participants helped each other with answers and shared knowledge\, with Shelly and Stephanie emerging as top performers. The game was organized by Kimia and was well-received by the group\, who expressed interest in playing again in future meetings.
URL:https://circleofrights.org/event/ysg-jeopardy-reminders/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251125T193000
DTEND;TZID=America/New_York:20251125T201500
DTSTAMP:20260619T141228
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172153Z
UID:4667-1764099000-1764101700@circleofrights.org
SUMMARY:YSG: Congenital Heart Conditions
DESCRIPTION:Dr. Preeti Raghavan joined to address questions about congenital heart conditions. 16 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nCongenital Heart ConditionsView and Download\n\n\n\nQuick recap\n\n\n\nThe meeting began with introductions and casual conversation\, including a discussion about stroke recovery experiences and the importance of support systems. Dr. Preeti Raghavan joined to address questions about congenital heart conditions\, particularly patent foramen ovale (PFO) and its relation to stroke\, while participants shared their personal experiences with various heart conditions and blood clotting issues. The conversation ended with discussions about medical testing for heart conditions and stroke recovery\, including ataxia treatment\, followed by announcements about upcoming presentations and schedule changes. \n\n\n\nSummary\n\n\n\nPatent Foramen Ovale and Stroke\n\n\n\nDr. Preeti Raghavan joined the meeting to follow up on questions about congenital heart disease\, specifically addressing a hole in the heart and its relation to stroke. She clarified that a hole in the heart\, known as a patent foramen ovale\, is common and typically does not cause issues\, but it can be checked if a stroke has no obvious cause. Preeti explained that strokes are mainly caused by blood clots\, and in some cases\, a large enough hole in the heart could allow clots to travel to the brain\, affecting multiple areas. She noted that while most people with a hole in the heart do not require treatment\, it might be considered if a stroke is linked to the defect. \n\n\n\nHeart Conditions and Management Discussion\n\n\n\nThe group discussed heart conditions\, with Kellee sharing her experience with atrial fibrillation and being on blood thinners\, while Abbyl mentioned having a patent foramen ovale (PFO) that was closed after her stroke. Julie also revealed she has a PFO\, which was an incidental finding after a misdiagnosed stroke\, and she is now seeing a hematologist due to ongoing clotting issues. The conversation highlighted the importance of monitoring and managing heart conditions to prevent potential complications. \n\n\n\nBlood Clotting and Heart Conditions\n\n\n\nThe group discussed health conditions related to blood clotting and heart issues. Julie and Josh shared their experiences with COVID-related strokes and being on blood thinners. Preeti explained what a hematologist does and clarified terms like PFO (Patent Foramen Ovale). The conversation touched on various medical tests\, such as TEE and TTE\, and the rarity of PFO being the cause of strokes. Layli and Stephanie asked questions about testing and conditions\, and Preeti provided explanations. \n\n\n\nPatent Foramen Ovale Testing\n\n\n\nPreeti explained that an echocardiogram\, including a transesophageal echo (TEE)\, can detect a patent foramen ovale (PFO)\, and described the bubble test\, which involves injecting agitated saline to track microbubbles and diagnose a PFO. She clarified that while not all stroke survivors require a PFO evaluation\, it is typically considered if no other cause is found. Preeti also clarified that cardiologists are the specialists who would order such tests\, and Stephanie confirmed that cardiologists would handle PFO testing. \n\n\n\nStroke and Ataxia Recovery Discussion\n\n\n\nThe meeting focused on discussing stroke recovery and ataxia\, with Dr. Preeti explaining the differences between typical stroke recovery and ataxia treatment. Michelle shared her experience with post-stroke movement issues\, and Layli provided encouragement about the potential for improvement in ataxia symptoms through physical therapy.
URL:https://circleofrights.org/event/ysg-congenital-heart-conditions/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
END:VCALENDAR