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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260224T191500
DTEND;TZID=America/New_York:20260224T201500
DTSTAMP:20260619T154115
CREATED:20260203T171631Z
LAST-MODIFIED:20260219T011237Z
UID:5689-1771960500-1771964100@circleofrights.org
SUMMARY:Young Stroke Group: Neuropsychologist from India
DESCRIPTION:Dr. Charumati Raghavan\, a neuropsychologist from India\, will be telling us about her profession and her interests.  \n\n\n\nSchedule: \n\n\n\n\n7:15-7:30 Free time for casual conversation & peer support\n\n\n\n7:30-7:55 Meeting topic presentation\n\n\n\n7:55-8:15 Questions and answers\n\n\n\n\nIf you are not a Young Stroke Group member\, please register for stroke support services and you will be sent an email with the link to join the meeting on Zoom.
URL:https://circleofrights.org/event/ysg-neuropsychologist-from-india/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T191500
DTEND;TZID=America/New_York:20260217T201500
DTSTAMP:20260619T154115
CREATED:20260114T203756Z
LAST-MODIFIED:20260219T003859Z
UID:5611-1771355700-1771359300@circleofrights.org
SUMMARY:YSG: Discuss particular conditions and medications\, side effects\, ...
DESCRIPTION:Dr. Cimo Chen\, NIH epidemiology\, discussed conditions\, medications\, and side effects. 25 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nMeeting SummaryDownload\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nMedications & Stroke Recovery:What We Need to KnowDownload\n\n\n\nParticular conditions\, medications and side effects \n\n\n\nQuick recap\n\n\n\nThe meeting focused on a presentation by Dr. Cimo Chen about medication management and side effects for stroke survivors. Dr. Chen shared information on reading prescription labels\, understanding medication interactions\, and using an online tool to check drug side effects and interactions. She emphasized the importance of communicating with healthcare providers about medications and monitoring for potential side effects. The group discussed various medications\, including blood thinners\, blood pressure drugs\, and antidepressants\, and how to safely manage them. Dr. Chen also demonstrated a medication analysis tool that provides detailed information on drug side effects and interactions. \n\n\n\nSummary\n\n\n\nStroke Care and Medication Management\n\n\n\nThe meeting began with Cimo Chen\, a physician epidemiologist\, joining the meeting to discuss medication management for stroke survivors. She explained how to read prescription labels\, the importance of reviewing all medications with healthcare providers\, and the benefits and side effects of various medications commonly prescribed to stroke survivors\, including antidepressants\, blood thinners\, statins\, and blood pressure medications. The conversation ended with a brief discussion about hormonal therapies and vitamin supplements for stroke survivors. \n\n\n\nMedication Management for Stroke Survivors\n\n\n\nCimo discussed medication management for stroke survivors\, emphasizing the importance of monitoring side effects and working with healthcare providers to adjust treatments as needed. She highlighted the role of pharmacists as safety nets and encouraged patients to ask questions about their medications. Cimo also demonstrated an online tool she developed to help patients understand medication side effects and interactions. The group discussed challenges with managing multiple medications and the importance of communication between different healthcare providers. \n\n\n\nDrug Interaction Database Overview\n\n\n\nDr. Chen presented on medication interactions and side effects\, demonstrating a database tool that provides real-time information on drug interactions\, side effects\, and warnings. She explained how to use the tool\, which requires login for detailed age/sex-specific data but is publicly accessible for general information. The discussion covered specific medications like Eliquis and Amlodipine\, with participants sharing their experiences and questions about side effects. Dr. Chen emphasized that while certain medications may have manageable side effects in general\, individual reactions can vary significantly\, and patients should consult their doctors about specific concerns.
URL:https://circleofrights.org/event/ysg-discuss-particular-conditions-and-medications-side-effects/
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T193000
DTEND;TZID=America/New_York:20260210T201500
DTSTAMP:20260619T154115
CREATED:20260114T203755Z
LAST-MODIFIED:20260203T171215Z
UID:5610-1770751800-1770754500@circleofrights.org
SUMMARY:YSG: Stroke Ressearch and Recovery
DESCRIPTION:
URL:https://circleofrights.org/event/ysg-stroke-ressearch-and-recovery/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260205T190000
DTEND;TZID=America/New_York:20260205T200000
DTSTAMP:20260619T154115
CREATED:20260116T170542Z
LAST-MODIFIED:20260116T170543Z
UID:5614-1770318000-1770321600@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting-feb26/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260203T193000
DTEND;TZID=America/New_York:20260203T201500
DTSTAMP:20260619T154115
CREATED:20260114T203448Z
LAST-MODIFIED:20260203T171317Z
UID:5606-1770147000-1770149700@circleofrights.org
SUMMARY:YSG: Neuroplasticity and the VNS Booster
DESCRIPTION:
URL:https://circleofrights.org/event/ysg-neuroplasticity-and-the-vns-booster/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260127T193000
DTEND;TZID=America/New_York:20260127T201500
DTSTAMP:20260619T154115
CREATED:20260114T203448Z
LAST-MODIFIED:20260203T172203Z
UID:5605-1769542200-1769544900@circleofrights.org
SUMMARY:YSG: Possible Volunteer Positions at Circle of Rights
DESCRIPTION:
URL:https://circleofrights.org/event/ysg-what-is-neuropsychology-how-can-it-help-stroke-survivors/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T193000
DTEND;TZID=America/New_York:20260120T201500
DTSTAMP:20260619T154115
CREATED:20260106T191645Z
LAST-MODIFIED:20260114T202843Z
UID:5549-1768937400-1768940100@circleofrights.org
SUMMARY:YSG: Headache
DESCRIPTION:
URL:https://circleofrights.org/event/ysg-headache/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260113T193000
DTEND;TZID=America/New_York:20260113T201500
DTSTAMP:20260619T154115
CREATED:20260106T191654Z
LAST-MODIFIED:20260219T005728Z
UID:5548-1768332600-1768335300@circleofrights.org
SUMMARY:YSG: MedRhythms InTandem
DESCRIPTION:Jeannine presented the MedRhythms InTandem device\, a FDA-approved medical device for walking rehabilitation after stroke that uses rhythmic auditory stimulation\, and discussed its functionality\, cost\, and insurance coverage. 24 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nMeeting SummaryView and Download\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nInTandem PresentationDownload\n\n\n\nQuick recap\n\n\n\nJeannine presented the MedRhythms InTandem device\, a FDA-approved medical device for walking rehabilitation after stroke that uses rhythmic auditory stimulation\, and discussed its functionality\, cost\, and insurance coverage. The conversation ended with discussions about the device’s practical applications. From Jeannine GreenBerg\, InTandem: jgreenberg@medrhythms.com 267-223-4891 \n\n\n\nSummary\n\n\n\nIntroduction\n\n\n\nJeannine\, a physical therapist with experience in neurorehabilitation\, was introduced as the guest speaker for the evening\, and Kimia provided an overview of her background and the topic she would discuss\, which was related to new technology for medical devices. \n\n\n\nInTandem Device for Stroke Rehabilitation\n\n\n\nJeannine introduced MedRhythms’ InTandem device\, a prescribed medical device for walking rehabilitation after stroke\, and explained its use of rhythmic auditory stimulation to improve walking. She discussed the device’s components\, functionality\, and the importance of music in treating walking impairments. Participants asked questions about insurance coverage\, accessibility for blind users\, and safety concerns for mobility-challenged individuals. Jeannine addressed these concerns\, noting that while Medicare has shown positive coverage for the device\, insurance coverage varies and is not guaranteed\, and she encouraged participants to follow up with their insurance providers. \n\n\n\nInTandem Device for Mobility Improvement\n\n\n\nThe meeting discussed the InTandem device\, a rhythmic auditory stimulation device designed to increase walking speed and mobility for individuals who walk independently. Jeannine explained that the device is FDA-approved and costs $5\,000 out-of-pocket if insurance does not cover it\, though Medicare often covers it. Michelle inquired about using the device for improving walking speed\, and Jeannine confirmed it can increase walking speed and works for walking speeds from 40 to 135 steps per minute. Participants also discussed the device’s code (E3200) and its potential coverage under commercial insurance\, with Jeannine suggesting that individuals can inquire with their insurance providers. \n\n\n\nFDA-Approved Gait Symmetry Device\n\n\n\nJeannine explained that the device is FDA approved and can be used for ambulatory individuals who walk at least 40 steps per minute. She described how the device adjusts music tempo based on walking speed and can help improve gait symmetry and balance. Kellee shared her positive experience with Medicare coverage for the device. Jeannine offered to provide prescription forms and insurance coverage information to interested participants. \n\n\n\nMed Rhythms for Stroke Recovery\n\n\n\nJeannine played a video of a user sharing her experience using Med Rhythms\, a device that helps improve gait through music and rhythm\, following a severe stroke. She emphasized its role in her recovery and highlighted that it is intended for home use\, Jeannine noted it can be used in physical therapy sessions if needed. Participants asked questions about the device’s use\, prescription process\, and durability\, with Jeannine providing clarity on these aspects.
URL:https://circleofrights.org/event/ysg-medrhythms-intandem/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
ATTACH;FMTTYPE=image/jpeg:https://circleofrights.org/wp-content/uploads/2026/01/medrhythms_intandem_kit_hand-1183575571.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260108T190000
DTEND;TZID=America/New_York:20260108T200000
DTSTAMP:20260619T154115
CREATED:20250626T204048Z
LAST-MODIFIED:20260119T154607Z
UID:4402-1767898800-1767902400@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:Below is a summary of what was discussed at the meeting. Teen Stroke Group Members can also access a recording. If you’d like to watch the replay\, please text Sue. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nQuick recap\n\n\n\nThe meeting focused on sharing experiences and challenges faced by young stroke survivors and their families. Participants\, including Susan (the facilitator)\, Crystal\, Jamie\, Donna\, and others\, discussed their personal stories\, the impact of strokes on daily life\, and the emotional and physical recovery processes. Crystal shared her daughter McKayla’s experience with a stroke during a parade\, leading to a diagnosis of Moyamoya disease and subsequent surgery. Jamie described her daughter Myla’s recovery journey after a hemorrhagic stroke\, highlighting ongoing challenges and the importance of regular medical monitoring. The group also discussed the role of caregivers\, with Tom Gallup introducing a nationwide brain injury caregiver support group and sharing resources. Susan outlined plans for future meetings\, including potential additional teen stroke groups and discussions on topics like prevention\, driving adaptations\, and bilateral exercises. The conversation ended with participants expressing support for one another and sharing practical tips for managing stroke-related challenges. \n\n\n\nSummary\n\n\n\nExercise Benefits for Learning and Brain Function\n\n\n\nThe group discussed the importance of exercise\, particularly before learning activities\, based on Nate’s presentation about a study from the Naperville 203 school district. Nate shared that students who exercised before school showed improved test scores and better attention spans\, leading to a recommendation for morning exercise. Several participants\, including Gabe and Myla\, mentioned their limited morning exercise routines\, while Dinithi noted her afternoon workouts and expressed interest in incorporating morning exercise. The discussion highlighted the potential benefits of exercise on brain function and recovery\, with Nate emphasizing its importance for both young people andstroke survivors. \n\n\n\nPersonal Stroke Experiences Shared\n\n\n\nThe group discussed personal experiences with strokes\, with Isabella sharing her story of having a stroke during a heart transplant operation that affected her right hand and speech. Myla described her experience with an AVM rupture two years ago\, which required skull removal surgery and initially left her unable to walk or speak. Gabe recounted his experience of waking up with a severe headache that led to hospitalization\, while Dinithi shared her story of having a brain cyst removed during her master’s program in neuroimaging informatics\, which affected her short-term memory. The discussion aimed to learn about different stroke experiences to help participants understand the condition better. \n\n\n\nSurvivor Stories and Caregiver Support\n\n\n\nThe meeting began with young stroke survivors sharing their experiences\, including Nate\, who described a severe headache incident in gym class that led to a stroke\, and Layli\, who had a stroke at 24 and is still recovering. Michelle shared her recent stroke experiences\, including three strokes\, and discussed her recovery process. Tom Gallup\, a stroke survivor and caregiver support group leader\, joined to discuss his ongoing involvement in brain injury advocacy and to invite the group to join his nationwide caregiver support group. The conversation ended with Gabe discussing his son’s October stroke and the challenges of navigating medical care and emotional recovery\, with Tom offering support and information about his caregiver group. \n\n\n\nSurviving Strokes: Personal Stories\n\n\n\nCrystal shared her daughter McKayla’s experience with a stroke caused by Moyamoya disease\, which occurred during a parade performance. Despite initial symptoms like vision problems\, McKayla’s stroke was not immediately recognized\, leading to emotional challenges for both McKayla and Crystal. Jamie discussed her daughter Myla’s recovery from a hemorrhagic stroke\, highlighting the ongoing physical and emotional challenges\, as well as the uncertainty of future strokes due to an undetermined cause. The group also discussed the importance of monitoring and support for stroke survivors\, with Layli offering resources for theater programs for individuals with brain injuries. \n\n\n\nTeen Stroke Support Meeting Planning\n\n\n\nThe group discussed goals and topics for upcoming young stroke survivor meetings\, including presentations on prevention versus repair\, hearing loss\, and driving adaptations. Crystal shared her expertise in EMDR therapy and bilateral activities for trauma recovery\, which she will present in March. Susan expressed interest in expanding teen stroke groups and exploring brain injury topics\, while also considering caregiver involvement. The conversation ended with Layli offering support to parents dealing with their children’s stroke experiences\, and Dinithi offering her email for further communication. \n\n\n\nCaregiver Challenges in Therapy Acceptance\n\n\n\nThe group discussed challenges faced by caregivers of children with disabilities\, particularly regarding therapy acceptance and balancing support. Crystal shared her daughter’s resistance to therapy while feeling the pressure to provide more help\, while Myla described similar struggles with her daughter McKayla\, who has reached a point of acceptance despite ongoing specialist recommendations. The discussion concluded with Susan announcing an upcoming presentation about “walking with music” technology\, scheduled for next Tuesday at 7:30 Eastern Time\, and noting that the company has shifted from county funding to seeking partnerships with device providers.
URL:https://circleofrights.org/event/teen-stroke-group-meeting-jan26/
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260106T193000
DTEND;TZID=America/New_York:20260106T201500
DTSTAMP:20260619T154115
CREATED:20260102T203718Z
LAST-MODIFIED:20260118T180036Z
UID:5537-1767727800-1767730500@circleofrights.org
SUMMARY:YSG: Stroke New Years Resolutions
DESCRIPTION:Below is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nStroke New Year’s Resolutions PresentationDownload\n\n\n\nQuick recap\n\n\n\nThe meeting focused on reviewing the Young Stroke Group’s 2025 activities and planning for 2026. Susan presented data on meeting categories from 2025 and discussed upcoming presentations for 2026\, including topics like headache\, neuropsychology\, and medication management. Members suggested additional topics such as nutrition\, accessible locations\, and a glossary of healthcare providers. Crystal shared her plans to present on bilateral exercises and music therapy. The group discussed the need for new partnerships and funding to support their activities. Susan emphasized the importance of volunteer positions and encouraged members to get involved in education and other roles. The conversation ended with a brief overview of the next presentation featuring Janine Greenberg\, who will discuss MedRhythms InTandem. \n\n\n\nStroke Leadership Council 2025 Categories\n\n\n\nThe meeting focused on reviewing the 2025 meeting categories for the Stroke Leadership Council\, which included eight categories such as stroke and brain health\, practical resources\, social connections\, and medication management. Susan noted that certain areas like medication management and nutrition needed more attention\, and she invited input from the group for potential speakers. Michelle offered to provide a contact for medication management expertise\, and the group discussed the need for more presentations on nutrition and healthy living. \n\n\n\nFuture Presentation Planning Discussion\n\n\n\nThe group discussed plans for future presentations and educational sessions. Michelle offered to organize a presentation with her boss\, who is a skilled presenter. Susan inquired about the content of upcoming sessions\, particularly regarding medication management. The group clarified the difference between presentations by healthcare professionals (middle four circles) and those by group members (practical resources and advice). Kimia mentioned that interviews with stroke survivors often provide valuable insights. Layli expressed interest in alternative therapies and clinical interventions\, noting that the group had already hosted five sessions on this topic. The group agreed to aim for more presentations on alternative therapies in the coming year. \n\n\n\nStroke Support Group Presentation Updates\n\n\n\nThe group discussed past and upcoming presentations for their stroke support group. Susan shared that recordings of past sessions are available through the website\, with full recordings available upon request. They reviewed upcoming presentations\, including one on headaches with Sherry\, and a neuropsychology session with Dr. Argonovich. McKayla mentioned she would be having neuropsych testing in April\, and the group discussed the purpose and benefits of neuropsych evaluations\, including identifying strengths\, gaps\, and potential accommodations in both school and work settings. \n\n\n\nStroke Education and Funding Planning\n\n\n\nThe meeting focused on planning educational sessions for stroke survivors\, with discussions about mental health\, adaptive sports\, and workplace accommodations. Susan announced that the organization would no longer receive county funding and was seeking partnerships with companies to generate revenue for future activities\, including a potential patient conference. Participants suggested topics for upcoming sessions\, including nutrition\, mental health\, and social connections\, with Yo offering to connect the group with a dietitian and lifestyle medicine expert. The group also discussed the need for volunteers in educational roles and planned to revisit the allocation of funds in a later meeting.
URL:https://circleofrights.org/event/ysg-stroke-new-years-resolutions/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
ATTACH;FMTTYPE=image/jpeg:https://circleofrights.org/wp-content/uploads/2026/01/COR-New-Years-resolutions.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251230T193000
DTEND;TZID=America/New_York:20251230T201500
DTSTAMP:20260619T154115
CREATED:20251031T142040Z
LAST-MODIFIED:20260203T172153Z
UID:5441-1767123000-1767125700@circleofrights.org
SUMMARY:YSG: End-of-Year Social Hour
DESCRIPTION:Below is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nQuick recap\n\n\n\nThe group held an informal meeting where members shared personal updates and discussed their experiences with strokes\, including recovery journeys and the impact on their lives. Members reflected on the importance of support and kindness from the group\, with several participants expressing gratitude for the community’s role in their recovery. The conversation ended with plans for the next session focused on New Year’s resolutions and discussions about living arrangements and age-inclusive support groups. \n\n\n\nSummary\n\n\n\nSupport and Recovery Updates\n\n\n\nThe group held an informal meeting to discuss personal updates and support each other. Kellee shared her medical challenges\, including a sinus fracture that requires surgery\, and received encouragement from the group. Lori\, a recent stroke survivor\, described her experience and the ongoing mystery of her stroke’s cause\, which led to a discussion about unknown stroke triggers. The group also celebrated Susan’s upcoming birthday and discussed the benefits of their support group\, with Rhonda expressing gratitude for the community’s impact on her recovery. \n\n\n\nStroke Recovery and Personal Growth\n\n\n\nThe group shared personal reflections on their experiences since joining\, with several members discussing their recovery journeys following strokes. Michelle revealed she had a stroke in June and was proud of her progress in accepting and discussing it\, while Lori and Josh shared how their strokes taught them the importance of asking for help and relying on others. The group discussed how these experiences have led to personal growth\, with members noting increased confidence in communicating their needs and a greater understanding of their own capabilities despite physical changes. Layli emphasized the value of unexpected kindness from group members in supporting mental health recovery. \n\n\n\nStroke Support Group Evolution\n\n\n\nThe group discussed the importance of listening and support\, with Lisa sharing her gratitude for Susan’s help after her stroke. Susan explained the history of the support group\, which began 18 years ago and evolved due to COVID-19\, leading to the creation of the current group. The members expressed appreciation for Susan’s efforts in supporting stroke survivors. \n\n\n\nPersonal Stroke Experiences and Insights\n\n\n\nThe group discussed personal experiences with strokes\, with Josh and Stephanie sharing that they had strokes after becoming parents\, though Stephanie clarified hers occurred six months after her son’s birth. The conversation explored how strokes have changed their perspectives and behaviors\, with Josh noting significant improvements in his anger management and patience. The discussion concluded with participants reflecting on recent acts of kindness and support from others\, with Layli highlighting the assistance she received from Lisa and Yeo. \n\n\n\nStroke Recovery and Support Stories\n\n\n\nThe group discussed acts of kindness and support they received after experiencing strokes. Josh shared how his wife Sarah helped him recover\, and Michelle expressed gratitude for Josh’s support during her recovery. The conversation touched on living arrangements\, with several members\, including Ciara and Layli\, discussing multi-generational households. Stephanie highlighted the value of age-inclusive support groups\, particularly noting the lack of such groups in her 30s.
URL:https://circleofrights.org/event/ysg-end-of-year-social-hour/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251223T193000
DTEND;TZID=America/New_York:20251223T201500
DTSTAMP:20260619T154115
CREATED:20251031T142041Z
LAST-MODIFIED:20260203T172153Z
UID:5442-1766518200-1766520900@circleofrights.org
SUMMARY:YSG: Going Back to Work
DESCRIPTION:Speaker: Yonara
URL:https://circleofrights.org/event/ysg-going-back-to-work/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T201500
DTEND;TZID=America/New_York:20251218T210000
DTSTAMP:20260619T154115
CREATED:20251215T172151Z
LAST-MODIFIED:20251215T172151Z
UID:5475-1766088900-1766091600@circleofrights.org
SUMMARY:Stroke Leadership Council
DESCRIPTION:
URL:https://circleofrights.org/event/stroke-leadership-council-3/
LOCATION:Zoom
CATEGORIES:Stroke Leadership Council
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251216T193000
DTEND;TZID=America/New_York:20251216T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172153Z
UID:4680-1765913400-1765916100@circleofrights.org
SUMMARY:YSG: Getting Ready for Winter
DESCRIPTION:Nicole’s presented about getting ready for winter. She shared strategies for managing cold weather challenges such as staying warm\, maintaining mobility\, and managing health concerns. 18 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nGetting Ready for Winter Presented by Nicole GulinoDownload\n\n\n\nYou can view the video that was included in the presentation on Tick Tock: \n\n\n\n\nWatch video\n\n\n\n\n \n\n\n\nQuick recap\n\n\n\nThe meeting focused on Nicole’s presentation about winter disability preparation\, where she shared strategies for managing cold weather challenges such as staying warm\, maintaining mobility\, and managing health concerns. The discussion covered specific tips for disabled individuals including vitamin intake\, exercise routines\, and safety precautions when walking in icy conditions. Participants shared personal experiences about flu shots and COVID vaccinations\, with some noting they experienced side effects while others reported no reactions. \n\n\n\nSummary\n\n\n\nWinter Disability Preparation Strategies\n\n\n\nNicole presented a slideshow on winter disability preparation\, discussing challenges like sleep issues\, slipping on ice\, seasonal depression\, and managing temperature. She suggested strategies such as maintaining adequate vitamin intake\, meal prepping\, and taking vitamins like D and B12\, as well as exercises like sit-to-stand with a ball between the legs to maintain flexibility and warmth during the winter months. \n\n\n\nWinter Safety for Stroke Survivors\n\n\n\nThe group discussed winter safety tips for stroke survivors\, with Nicole sharing her experience of feeling colder due to blood thinners and suggesting layering\, heated blankets\, and mobility aids with ice picks for walking in snow. Susan mentioned her personal challenge of maintaining proper blood flow and warmth on the stroke-affected side\, while Shelli inquired about the connection between blood thinners and cold sensitivity\, which was confirmed by Nicole and Yonara. The discussion concluded with suggestions for staying engaged through activism and maintaining safety during winter activities. \n\n\n\nWinter Safety and Health Tips\n\n\n\nNicole discussed winter safety tips for people with disabilities\, emphasizing the importance of having someone accompany them when going out\, being cautious of icy surfaces\, and learning how to fall safely. She advised on maintaining good physical and mental health through hydration\, sleep\, exercise\, and engaging in hobbies\, while also highlighting the need for proper hygiene\, especially during flu season. Nicole concluded by encouraging participants to maintain their routines during the holidays to stay grounded and healthy. \n\n\n\nWinter Safety for Stroke Survivors\n\n\n\nThe group discussed winter safety tips for stroke survivors\, including using a cane\, wearing insulated clothing\, and sitting on padded envelopes to stay warm. Kellee shared her experience with seasonal affective disorder and using artificial light therapy. Michelle inquired about flu shot experiences and noted that stroke survivors may need to be more cautious during winter due to potential dizziness and gait issues. \n\n\n\nVaccination Safety and Recovery Tips\n\n\n\nThe group discussed the importance of getting flu and COVID-19 vaccinations\, with several members sharing their experiences and recommendations. Layli highlighted the need for extra caution when walking due to potential balance issues post-stroke. Roo suggested timing vaccinations for weekends to allow recovery time and recommended hydration before and after shots.
URL:https://circleofrights.org/event/ysg-getting-ready-for-winter/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T193000
DTEND;TZID=America/New_York:20251209T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172153Z
UID:4669-1765308600-1765311300@circleofrights.org
SUMMARY:YSG: Eye Issues\, Exercises
DESCRIPTION:Kimia led the discussion on visual disturbances that can occur after a stroke. 15 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nVisual Disturbances Post-Stroke Presented by Kimia Dasteh GoliDownload\n\n\n\nQuick recap\n\n\n\nThe meeting’s main focus was on stroke-related visual disturbances\, where participants shared their experiences with various vision problems and discussed the importance of considering eye issues in stroke survivors. The group also addressed challenges in accessing specialists and the coordination of care between different medical specialists after a stroke. \n\n\n\nSummary\n\n\n\nPost-Stroke Visual Disturbance Management\n\n\n\nThe meeting focused on visual disturbances that can occur after a stroke\, with Kimia leading the discussion. She explained that stroke can affect parts of the brain controlling vision\, eye movement\, and visual understanding\, with studies showing two-thirds of stroke survivors experience some type of vision problem. Participants shared their experiences\, including Kellee who lost peripheral vision in her left eye and Michelle who experienced visual field loss and dizziness. The group discussed various eye exams and treatments they had undergone\, including visits to ophthalmologists\, neuro-ophthalmologists\, and vision therapists. Kimia presented common vision problems after stroke\, such as visual field loss\, eye movement issues\, and visual processing changes\, and the group discussed how these symptoms can impact daily activities and require ongoing management. \n\n\n\nStroke Symptoms and Vision Impact\n\n\n\nThe group discussed various symptoms associated with strokes\, including vision problems\, dry eye syndrome\, and light sensitivity. Lisa shared her experience of losing a quarter of her vision after a TIA and a full stroke\, but she did not notice the vision loss. Kimia emphasized the importance of considering eye problems in stroke survivors\, as symptoms may not always be apparent. Stephanie asked about the relationship between stroke-related symptoms and neuro-ophthalmology\, and Kimia explained that while some symptoms may be directly related to eye issues\, others could be due to broader neurological impacts. \n\n\n\nVisual Phenomena and Stroke Connections\n\n\n\nThe group discussed various visual phenomena and their potential connection to strokes\, including light sensitivity and migraines. Kimia explained that positive visual phenomena\, such as flashes of light or shimmering patterns\, can be a precursor to another stroke\, particularly if it occurs in the thalamic or occipital regions. Stephanie inquired about specialists for stroke-related headaches\, and Susan suggested looking into vascular neurologists\, though she was unsure if there was a specific specialist for stroke and migraine combination. \n\n\n\nSpecialist Access Challenges Discussion\n\n\n\nThe group discussed challenges with accessing specialists\, particularly for conditions like stroke and neuro-ophthalmology. Michelle shared her experience of a long wait for an appointment and suggested that having a neurologist refer patients as stroke-related could expedite the process. Stephanie expressed frustration with the complexity and lack of communication among specialists\, while Kimia explained that insurance restrictions often require patients to see a primary specialist before being referred to a higher-level specialist\, causing delays. Susan proposed leveraging her position as the group head to potentially expedite access to specialists and mentioned plans to discuss winter-related health measures in the next meeting. \n\n\n\nStroke Care Coordination Challenges\n\n\n\nThe group discussed the challenges of coordinating care between different medical specialists after a stroke\, particularly regarding the intersection between neurological and ENT issues. Stephanie shared her experience with multiple specialists including neurologists\, ENTs\, and neuro-ophthalmologists\, while Kimia explained that the limited number of neuro-ENT specialists makes coordination difficult. The discussion highlighted how the U.S. healthcare system often separates specialists rather than integrating their expertise\, and concluded with Kimia’s recommendation that patients should bring their full medical history to each appointment to educate their doctors about their stroke-related conditions.
URL:https://circleofrights.org/event/ysg-eye-issues-exercises-2/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T190000
DTEND;TZID=America/New_York:20251204T194500
DTSTAMP:20260619T154115
CREATED:20250626T204048Z
LAST-MODIFIED:20260116T170543Z
UID:4401-1764874800-1764877500@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting-dec25/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251202T193000
DTEND;TZID=America/New_York:20251202T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172153Z
UID:4668-1764703800-1764706500@circleofrights.org
SUMMARY:YSG Jeopardy: Reminders on Proprioception\, Spasticity\, Fatigue Management\, Music\, Attention Difficulties\, and Physiatry
DESCRIPTION:Kimia and Layli organized a Jeopardy-style meeting where members answered trivia questions for points. 19 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nQuick recap\n\n\n\nKimia and Layli organized a Jeopardy-style meeting where participants answered medical trivia questions for points\, with Kimia managing participant engagement and Layli serving as scorekeeper and timekeeper. The game involved multiple rounds covering cardiovascular and neurological conditions\, medications\, and related terms\, with participants helping each other and sharing knowledge throughout the session. The conversation ended with participants expressing interest in playing again\, and all participants having the opportunity to participate in the game. \n\n\n\nSummary\n\n\n\nJeopardy-Style Meeting Logistics\n\n\n\nKimia and Layli organized a Jeopardy-style meeting\, noting that Stu was absent due to illness. They discussed logistics\, including keeping track of participants’ points using an Excel sheet and ensuring everyone had a turn to speak by calling on them alphabetically. Layli confirmed she would act as the scorekeeper and timekeeper\, while Kimia would manage participant engagement. The meeting was set to begin five minutes later\, and Kimia mentioned she and Layli had reviewed the questions. \n\n\n\nJeopardy-Style Game Session\n\n\n\nThe meeting began with Kimia explaining the rules of a Jeopardy-style game\, where participants would select categories and answer questions for points. Layli described the game mechanics\, including the option to phone a friend and the point distribution. As the game progressed\, participants took turns answering questions\, with some receiving help from others. The session was recorded\, and Kimia and Layli managed the game\, keeping track of scores and providing assistance when needed. \n\n\n\nMedical Trivia Game Session\n\n\n\nThe group played a medical trivia game where participants answered questions about hypertension\, blood thinners\, cardiovascular disease\, and strokes. The game involved multiple rounds where players could earn points by answering questions about various medical conditions and concepts. Participants helped each other with answers and discussed terms like coronary artery disease and COPD. \n\n\n\nMedical Trivia Game Session\n\n\n\nThe group played a game where participants took turns answering medical-related questions for points. Kimia\, Jeffrey\, and Layli discussed splitting points after Jeffrey received a hint from Kelly. Rhonda asked about stroke signs and symptoms\, which the group confirmed was correct. Emilio chose to answer a question about the heart\, which he successfully answered. Michelle chose the “OTHER” category for $500 and correctly answered a question about neuroplasticity related to language skills. The game continued with Stephanie choosing to answer a question about the heart for $500. \n\n\n\nMedical Trivia Game Session\n\n\n\nThe meeting involved a game where participants answered medical questions to earn points. Kimia led the game\, ensuring everyone had a chance to answer\, and participants discussed topics such as types of strokes\, heart chambers\, and cardiovascular conditions. Brendan shared his recent experience with strokes\, and Gordon\, who was participating remotely\, successfully answered a question about a common name for a septal defect. The session concluded with Layli confirming that all participants had a chance to participate. \n\n\n\nMedical Trivia Game Session\n\n\n\nThe group played a medical trivia game where participants took turns answering questions about cardiovascular and neurological conditions\, medications\, and related terms. The questions ranged from $100 to $500 in value\, with topics including statins\, proprioception\, spasticity\, and arrhythmia. Participants helped each other with answers and shared knowledge\, with Shelly and Stephanie emerging as top performers. The game was organized by Kimia and was well-received by the group\, who expressed interest in playing again in future meetings.
URL:https://circleofrights.org/event/ysg-jeopardy-reminders/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251125T193000
DTEND;TZID=America/New_York:20251125T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172153Z
UID:4667-1764099000-1764101700@circleofrights.org
SUMMARY:YSG: Congenital Heart Conditions
DESCRIPTION:Dr. Preeti Raghavan joined to address questions about congenital heart conditions. 16 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nCongenital Heart ConditionsView and Download\n\n\n\nQuick recap\n\n\n\nThe meeting began with introductions and casual conversation\, including a discussion about stroke recovery experiences and the importance of support systems. Dr. Preeti Raghavan joined to address questions about congenital heart conditions\, particularly patent foramen ovale (PFO) and its relation to stroke\, while participants shared their personal experiences with various heart conditions and blood clotting issues. The conversation ended with discussions about medical testing for heart conditions and stroke recovery\, including ataxia treatment\, followed by announcements about upcoming presentations and schedule changes. \n\n\n\nSummary\n\n\n\nPatent Foramen Ovale and Stroke\n\n\n\nDr. Preeti Raghavan joined the meeting to follow up on questions about congenital heart disease\, specifically addressing a hole in the heart and its relation to stroke. She clarified that a hole in the heart\, known as a patent foramen ovale\, is common and typically does not cause issues\, but it can be checked if a stroke has no obvious cause. Preeti explained that strokes are mainly caused by blood clots\, and in some cases\, a large enough hole in the heart could allow clots to travel to the brain\, affecting multiple areas. She noted that while most people with a hole in the heart do not require treatment\, it might be considered if a stroke is linked to the defect. \n\n\n\nHeart Conditions and Management Discussion\n\n\n\nThe group discussed heart conditions\, with Kellee sharing her experience with atrial fibrillation and being on blood thinners\, while Abbyl mentioned having a patent foramen ovale (PFO) that was closed after her stroke. Julie also revealed she has a PFO\, which was an incidental finding after a misdiagnosed stroke\, and she is now seeing a hematologist due to ongoing clotting issues. The conversation highlighted the importance of monitoring and managing heart conditions to prevent potential complications. \n\n\n\nBlood Clotting and Heart Conditions\n\n\n\nThe group discussed health conditions related to blood clotting and heart issues. Julie and Josh shared their experiences with COVID-related strokes and being on blood thinners. Preeti explained what a hematologist does and clarified terms like PFO (Patent Foramen Ovale). The conversation touched on various medical tests\, such as TEE and TTE\, and the rarity of PFO being the cause of strokes. Layli and Stephanie asked questions about testing and conditions\, and Preeti provided explanations. \n\n\n\nPatent Foramen Ovale Testing\n\n\n\nPreeti explained that an echocardiogram\, including a transesophageal echo (TEE)\, can detect a patent foramen ovale (PFO)\, and described the bubble test\, which involves injecting agitated saline to track microbubbles and diagnose a PFO. She clarified that while not all stroke survivors require a PFO evaluation\, it is typically considered if no other cause is found. Preeti also clarified that cardiologists are the specialists who would order such tests\, and Stephanie confirmed that cardiologists would handle PFO testing. \n\n\n\nStroke and Ataxia Recovery Discussion\n\n\n\nThe meeting focused on discussing stroke recovery and ataxia\, with Dr. Preeti explaining the differences between typical stroke recovery and ataxia treatment. Michelle shared her experience with post-stroke movement issues\, and Layli provided encouragement about the potential for improvement in ataxia symptoms through physical therapy.
URL:https://circleofrights.org/event/ysg-congenital-heart-conditions/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T193000
DTEND;TZID=America/New_York:20251118T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172153Z
UID:4666-1763494200-1763496900@circleofrights.org
SUMMARY:YSG: Dysarthria
DESCRIPTION:Professor Yasmeen Faroqi-Shaw led a discussion about dysarthria\, one of the speaking issues that you can get from a stroke. 16 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nQuick recap\n\n\n\nThe meeting began with an in-depth discussion about dysarthria led by Professor Yasmeen Faroqi-Shaw. The group explored various speech therapy techniques and devices\, including LSVT\, breath support exercises\, and electrical stimulation\, while sharing personal experiences with different treatment approaches. The session concluded with discussions about the relationship between ataxia and dysarthria. \n\n\n\nSummary\n\n\n\nDysarthria and Stroke Therapy Updates\n\n\n\nThe meeting began with a conversation about dysarthria\, a speech disorder caused by muscle weakness or paralysis. Professor Yasmeen Faroqi-Shaw\, from the University of Maryland\, was invited to speak about dysarthria\, explaining its causes\, symptoms\, and the complex neural and muscular processes involved in speech. \n\n\n\nDysarthria Symptoms and Therapy Overview\n\n\n\nYasmeen discussed the different symptoms and types of dysarthria\, emphasizing the importance of a speech-language pathologist for diagnosis. She explained that dysarthria is a muscular weakness or paralysis affecting speech muscles\, and therapy can help improve speech quality. Yasmeen highlighted that while aphasia\, apraxia\, and dysarthria can co-occur\, a speech-language pathologist can differentiate between them through assessments. She also mentioned that LSVT\, a well-established therapy technique\, is commonly used for dysarthria\, and asked if anyone in the group had experience with it. \n\n\n\nSpeech Therapy Techniques for Dysarthria\n\n\n\nThe group discussed speech therapy techniques for dysarthria\, focusing on LSVT and breath support exercises. Layli shared her experience with an EMST device for respiratory muscle strengthening. Susan mentioned a teenage patient who can only whisper\, and Layli offered to help with speech techniques. Yasmeen explained how speech therapy exercises\, like the one demonstrated in the video\, work to strengthen muscles and improve speech quality. The discussion also touched on the use of oral appliances to help with speech impairments. \n\n\n\nSpeech Rehabilitation Devices and Therapies\n\n\n\nThe group discussed various devices and therapies for speech rehabilitation after strokes. Layli explained an EMST device\, similar to an inhaler\, which helps with speech by by strengthening respiratory muscles involved with speech production. Yasmeen presented on electrical stimulation as a therapy for improving speech muscles\, though noted mixed opinions and limited research on its effectiveness. The participants shared personal experiences with these treatments\, including Nicole’s use of electrical stimulation for swallowing difficulties and Shelli’s recovery process after her stroke. \n\n\n\nE-Stim and Speech Therapy Discussion\n\n\n\nThe meeting focused on e-stim therapy for speech and motor function\, where Yasmeen explained that muscle stimulation only occurs during treatment and the effects are only temporary but “wake up” the muscles. The group discussed singing’s benefits for speech therapy\, with Yasmeen clarifying that while there’s no evidence singing helps voice recovery\, it provides emotional support and can aid people with apraxia due to its rhythmic structure. Layli asked about the relationship between ataxia and dysarthria\, which Yasmeen explained they are separate conditions\, Ataxia affects movements anywhere in the body while dysarthria affects movements involved in speech production only.
URL:https://circleofrights.org/event/ysg-dysarthria/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T193000
DTEND;TZID=America/New_York:20251111T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172144Z
UID:4665-1762889400-1762892100@circleofrights.org
SUMMARY:YSG: Different Types of Heart Defects
DESCRIPTION:Kimia presented about heart disease and its relationship to stroke. 18 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nHeart Disease Presented by Kimia Dasteh GoliDownload\n\n\n\nQuick recap\n\n\n\nThe meeting focused on a presentation about heart disease and its relationship to stroke\, where participants learned about heart functions\, risk factors\, and diagnostic tools. The group discussed various heart conditions\, shared personal experiences with heart attacks and other conditions\, and explored common risk factors and symptoms. The conversation ended with a discussion on medications and treatments for different heart diseases\, as well as plans for future sessions including a presentation on dysarthria. \n\n\n\nSummary\n\n\n\nHeart Disease and Stroke Connection\n\n\n\nThe meeting focused on a presentation about heart disease and its relation to stroke\, delivered by Kimia. Participants discussed the functions of the heart\, risk factors for heart disease\, and diagnostic tools. Kimia explained that heart disease can lead to stroke and vice versa\, and highlighted the importance of understanding these conditions to prevent them. The group also talked about comorbidities\, which are multiple diseases that can worsen each other\, and shared personal experiences with heart conditions. \n\n\n\nCommon Heart Diseases Discussion\n\n\n\nThe meeting focused on common heart diseases\, with Kimia leading a discussion on coronary artery disease\, myocardial infarction\, and heart arrhythmias. Participants shared personal experiences and symptoms\, including Steven’s account of his 2006 heart attack and Roo’s experience with a heart attack and stroke. The group discussed risk factors such as poor diet\, smoking\, stress\, and genetics. Kimia emphasized the importance of recognizing symptoms like chest pain\, shortness of breath\, and fatigue. The conversation ended with a brief discussion on atrial fibrillation\, highlighting its impact on blood flow and the need for treatment. \n\n\n\nHeart Conditions and Treatment Options\n\n\n\nThe meeting focused on discussing various heart conditions\, medications\, and treatments. Kimia presented on different types of heart diseases\, including congenital heart defects\, heart valve diseases\, and atrial fibrillation. Participants shared their personal experiences with conditions such as AFib\, pulmonary embolism\, and artery dissections. The group discussed medications like Eliquis\, Coumadin\, and Xarelto\, as well as potential long-term side effects. They also explored treatment options\, including lifestyle changes\, medication\, and surgery. The conversation ended with a discussion about bringing in a cardiologist for future sessions and planning for an upcoming presentation on dysarthria by Dr. Faroki Shah.
URL:https://circleofrights.org/event/ysg-different-types-of-heart-defects/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251106T190000
DTEND;TZID=America/New_York:20251106T194500
DTSTAMP:20260619T154115
CREATED:20250626T204047Z
LAST-MODIFIED:20250626T204047Z
UID:4400-1762455600-1762458300@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting-6/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251104T193000
DTEND;TZID=America/New_York:20251104T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172144Z
UID:4664-1762284600-1762287300@circleofrights.org
SUMMARY:YSG: How Do I Live After a Trauma? (Part 2)
DESCRIPTION:Syrita Simmons\, a social worker from Rehab Without Walls\, spoke to us on Living After a Trauma. \n\n\n\nBelow is a summary of what was discussed at the meeting and a copy of the presentation. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nUnderstanding Trauma and Stroke Recovery: Pathways to Healing and Rehabilitation\, Presented by Syrita Simmons\, LCSWDownload\n\n\n\n\n\n\n\nPrintable Version of Meeting SummaryDownload\n\n\n\nQuick recap\n\n\n\nThe meeting featured Syrita Simmons\, a licensed clinical social worker\, who presented on trauma responses and coping strategies\, particularly focusing on managing anxiety and processing emotional aspects after physical recovery. The session concluded with discussions about practical applications of trauma management techniques. \n\n\n\nSummary\n\n\n\nIntroducing Syrita Simmons\, Clinical Therapist\n\n\n\nThe main portion of the meeting introduced Syrita Simmons\, a licensed clinical social worker from Rehab Without Walls\, who specializes in stroke\, brain injury\, spinal cord injury\, amputation\, and long COVID patients. She explained that her company provides in-home therapy services for up to 21 hours per week and also works as a therapist at Rhapsody Counseling. The conversation ended with an invitation for questions before her 20-minute presentation on trauma. \n\n\n\nTrauma Recovery and Coping Strategies\n\n\n\nSyrita discussed coping strategies and the fight-or-flight response\, emphasizing the importance of grounding techniques for managing anxiety\, especially for those who are alone after a traumatic event like a stroke. She explained that trauma can have long-lasting effects on mental\, physical\, and emotional well-being\, and she highlighted the need to recognize and address triggers. The group discussed the concept of fight-or-flight\, with Amber explaining it as a surge of adrenaline that prompts either fighting or fleeing\, and Syrita added that freezing is another common response. \n\n\n\nReframing Boston’s Negative Memories\n\n\n\nSyrita discussed with Josh his negative association with Boston due to a past stroke\, explaining that such reactions are expected after traumatic events. She suggested replacing the negative memory with positive ones through small\, controlled steps\, similar to how Josh reframed September from being associated with his stroke to his marriage. Shelli asked if Josh could reframe his feelings about Boston by doing something enjoyable there\, which Syrita confirmed could be a helpful approach. \n\n\n\nAnxiety Management and Coping Strategies\n\n\n\nSyrita discussed strategies for managing anxiety and trauma\, emphasizing the importance of gradual exposure and coping skills. She advised Erin to take small steps when facing triggering situations\, such as visiting a hairstylist\, and suggested journaling as a way for Julie to process feelings associated with Christmas. Syrita also encouraged Roo to consider celebrating her survival of a stroke as a separate event from her wedding anniversary. The discussion concluded with Syrita offering advice on managing anxiety about future events\, emphasizing the importance of focusing on controllable aspects and creating safety through support systems. \n\n\n\nTrauma and PTSD Coping Strategies\n\n\n\nSyrita presented on the differences between trauma responses\, PTSD\, and anxiety\, explaining how PTSD symptoms persist beyond three months while acute stress disorder symptoms typically fade. She shared various coping strategies including music tasks\, mindfulness exercises\, and breathing techniques like the 4-7-8 method\, noting that these approaches can help restore the mind-body connection and manage both mental and physical symptoms. The group discussed practical applications of these techniques. \n\n\n\nEmotional Recovery After Stroke\n\n\n\nThe meeting focused on a discussion with Syrita\, who provided insights on processing emotional aspects after physical recovery\, particularly in the context of strokes. Participants shared personal experiences and coping mechanisms\, including the use of exercise programs and support groups. The conversation also touched on the importance of celebrating small victories and the potential for continued progress beyond formal therapy.
URL:https://circleofrights.org/event/ysg-how-do-i-live-after-a-trauma-part2/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
ATTACH;FMTTYPE=image/jpeg:https://circleofrights.org/wp-content/uploads/2025/06/Reliving-Trauma-Coping-Grounding-Techniques.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251028T193000
DTEND;TZID=America/New_York:20251028T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172144Z
UID:4663-1761679800-1761682500@circleofrights.org
SUMMARY:YSG: How Do I Live After a Trauma?
DESCRIPTION:Sue led a discussion to prepare for next week’s presentation by Syrita Simmons\, on living after a trauma. 22 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nThe presentation outline from the meeting is included below for reference. \n\n\n\nHow Do I Live After a Trauma? OutlineDownload\n\n\n\nQuick recap\n\n\n\nThe meeting began with participants sharing personal experiences and introductions\, including discussions about recent health challenges and upcoming presentations on trauma. The group explored definitions and symptoms of trauma\, including various emotional and physiological responses\, and shared personal experiences related to triggers and coping mechanisms. The session concluded with a discussion about common triggers among stroke survivors and their coping strategies\, followed by announcements about future polls and continued discussions on Slack. \n\n\n\nSummary\n\n\n\nLiving Well Post-Stroke Experience\n\n\n\nSusan and Julie discussed Julie’s experience as a professor of women’s and gender studies at the University of Missouri\, where she teaches disability studies. Julie shared that she has hemiparesis in her left arm and some cognitive difficulties following a stroke two years ago. Despite these challenges\, Julie remains active\, participating in activities like biking and CrossFit. Susan explained the purpose of their group\, which focuses on helping individuals reintegrate into the community after leaving the hospital and initial rehabilitation. Julie expressed that she is already living her desired life post-stroke and does not have specific recovery goals. \n\n\n\nTrauma Meeting and Personal Updates\n\n\n\nSusan discussed plans for upcoming meetings on trauma\, including a session with Sarita Simmons\, LCSW\, who works in Texas with Rehab Without Walls. The group discussed various personal matters\, including Julie’s recent ADHD diagnosis\, Michelle’s sinus infection\, and Josh’s anniversary of his stroke. They also touched on Amber’s recovery from a stroke three months prior and Kellee’s observations about Josh’s appearance after getting a haircut. \n\n\n\nMeeting Agenda and Participant Updates\n\n\n\nThe meeting began with participants sharing personal experiences\, including Josh’s two COVID-related strokes and a pulmonary embolism. Susan introduced the agenda and mentioned that Sarita Simmons would present on trauma next week\, as she was unable to attend this meeting. Susan explained that the meeting would be recorded and asked participants to use the React feature for electronic hand raising if they wanted to speak. The meeting then transitioned to a pre-poll for participants to indicate how much they had learned during the meeting. \n\n\n\nUnderstanding Trauma and Its Symptoms\n\n\n\nThe meeting focused on defining trauma and its symptoms. Susan provided a definition from the Crisis Prevention Institute\, describing trauma as an emotional response to terrible events. Participants discussed various symptoms of trauma\, including flashbacks\, anxiety\, hypervigilance\, depression\, and strained relationships. The group also explored triggers\, which were not explicitly defined in the transcript. \n\n\n\nUnderstanding PTSD Triggers\n\n\n\nThe group discussed the concept of triggers\, particularly in the context of PTSD and trauma. Participants shared personal experiences and definitions\, with Josh explaining that triggers are sensory reminders of past trauma that evoke emotional and physical responses. The discussion included examples from several participants\, including Kellee who described her reaction to pain from a car accident. The conversation concluded with Susan reading a definition from the Crisis Prevention Institute\, which described triggers as signals that lead to emotional\, physiological\, and behavioral responses based on historical traumatic experiences. \n\n\n\nStroke Triggers and Coping Strategies\n\n\n\nThe group discussed triggers and coping mechanisms related to stroke survivors. Susan shared a list of common triggers\, including being touched\, loud noises\, and loss of control. Members shared personal triggers and coping strategies\, such as distraction\, mindfulness\, and using noise-canceling headphones. The group also discussed the challenges of memory loss and the importance of finding personalized coping methods. Susan announced that a post-poll would be launched\, and members were encouraged to continue discussions on Slack.
URL:https://circleofrights.org/event/ysg-how-do-i-live-life-after-a-trauma/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T193000
DTEND;TZID=America/New_York:20251021T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172144Z
UID:4662-1761075000-1761077700@circleofrights.org
SUMMARY:YSG: One-Handed Musical Instruments
DESCRIPTION:Roo demonstrated music technology and shared his experience with music therapy for improved mood and mental state despite physical limitations. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nQuick recap\n\n\n\nRoo demonstrated music technology and shared his experiences with one-handed instruments\, while other members discussed the benefits of music therapy for recovery and emotional well-being. The conversation ended with updates on individual progress\, including Crystal’s request for advice about hand function recovery with instruments. \n\n\n\nSummary\n\n\n\nMusic and Depression Management\n\n\n\nRoo demonstrated how to use GarageBand and other music software to create music using loops and a keyboard\, and shared his experience with one-handed instruments like tongue drums and the ORBA2. He explained how these instruments help him stay present and manage depression by providing a focused activity. The group discussed the benefits of music technology versus traditional instruments\, with Roo emphasizing that creativity is more important than the technology used. Layli asked if playing these instruments has helped Roo’s recovery\, to which he replied that music has been a helpful tool for managing his depression and staying present. \n\n\n\nMusic Therapy for Recovery\n\n\n\nRoo shared his experience with music therapy during his hospitalization\, explaining how it helped improve his mood and mental state despite physical limitations. He described using music and drawing as outlets for expression\, and mentioned that his physical therapist incorporated music to help with rehabilitation exercises. The discussion concluded with Roo adding that music can aid both emotional and physical recovery\, particularly when movements are coordinated with music’s beat. \n\n\n\nHand Function and Recovery Insights\n\n\n\nCrystal\, McKayla’s mom\, sought advice from Roo about McKayla’s efforts to regain hand function for playing the saxophone\, with Rue suggesting visualization techniques and activities like playing cards and using toys from Goodwill for hand strengthening.
URL:https://circleofrights.org/event/ysg-one-handed-musical-instruments/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251014T193000
DTEND;TZID=America/New_York:20251014T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172144Z
UID:4653-1760470200-1760472900@circleofrights.org
SUMMARY:YSG: Horseback riding
DESCRIPTION:Beth and her trainer Gail talked to us about why horseback riding is good for stroke survivors. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryView and Download\n\n\n\nQuick recap\n\n\n\nBeth shared her experience with a stroke support group and her newfound interest in horseback riding\, which she discussed with her instructor Gail Todter. The group explored horseback riding as a form of therapy and emotional support\, with Beth and Gail highlighting the benefits for balance and overall well-being. \n\n\n\nSummary\n\n\n\nEmpowering Recovery through Riding\n\n\n\nBeth introduced her horseback riding instructor\, Gail Todter\, and shared her experience of starting horseback riding after a stroke. Beth discussed how riding helped improve her balance and taught her to use her whole body\, rather than relying solely on her legs. She emphasized the importance of finding an activity that brings joy and taps into new abilities\, encouraging others to pursue activities they love. \n\n\n\nJourney to Trust in Riding\n\n\n\nBeth and Gail discussed Beth’s journey with horseback riding\, focusing on overcoming initial fears and developing trust with the horse. Gail emphasized the importance of safety and communication\, while Beth highlighted the unique experiences and lessons gained from riding different horses. They also touched on the role of the horse as a sentient being and the mutual growth experienced during their sessions. \n\n\n\nHorse Therapy for Stroke Recovery\n\n\n\nThe group discussed horseback riding as a form of therapy\, with Beth and Gail sharing their experiences. Beth\, who had no prior horseback riding experience before her stroke\, found it to be beneficial for her balance and overall well-being. Gail explained how horseback riding helps with body tension and relaxation\, particularly for stroke survivors. The group also discussed the importance of finding activities that bring joy and happiness\, even with limitations.
URL:https://circleofrights.org/event/ysg-horsebackriding/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
ATTACH;FMTTYPE=image/jpeg:https://circleofrights.org/wp-content/uploads/2025/06/Horseback-riding-for-therapy-and-emotional-support.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251007T210000
DTEND;TZID=America/New_York:20251007T220000
DTSTAMP:20260619T154115
CREATED:20250808T143512Z
LAST-MODIFIED:20250808T143513Z
UID:5200-1759870800-1759874400@circleofrights.org
SUMMARY:Stroke Leadership Council
DESCRIPTION:
URL:https://circleofrights.org/event/stroke-leadership-council-2/
LOCATION:Zoom
CATEGORIES:Stroke Leadership Council
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251007T193000
DTEND;TZID=America/New_York:20251007T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172144Z
UID:4652-1759865400-1759868100@circleofrights.org
SUMMARY:YSG: Introduction to Physiatry
DESCRIPTION:Dr. Martin Lanoff introduced physiatry\, a specialty that looks at the whole body\, working with you to select the best way to treat your disability. 21 attended. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryDownload\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nWhat is a Physiatrist? Presented by Dr. Martin Lanoff Download\n\n\n\nQuick recap\n\n\n\nThe meeting began with casual conversation and introductions among participants from various locations\, including discussions about personal experiences and work challenges. The main focus was on learning about Physiatry\, a medical specialty. Dr. Martin Lanoff\, a physiatrist specializing in outpatient musculoskeletal pain and sports\, provided insights into treating conditions like stroke and spinal cord injuries\, while addressing questions about treatments and medications for various medical conditions. He explained the unique role of physiatrists in treating the whole person through a holistic approach to patient care. \n\n\n\nSummary\n\n\n\nUnderstanding Physiatry: A Medical Specialty\n\n\n\nKimia introduced the main topic\, highlighting the purpose of the meeting: to learn about physiatry\, a medical specialty\, with a focus on sharing experiences and knowledge about physiatrists for those who are unfamiliar with the field. Kimia introduced Dr. Lanoff\, a physiatrist\, who specializes in Physical Medicine & Rehabilitation\, treating spine\, nonoperative orthopedic & sports conditions. \n\n\n\nPhysiatry’s Holistic Patient Approach\n\n\n\nMartin discussed the unique role of physiatrists\, emphasizing their holistic approach to patient care by treating the whole person\, not just the physical symptoms. He highlighted the importance of considering psychological\, social\, and environmental factors in patient treatment. Martin also explained the training and certification process for physiatrists\, noting the specialty’s focus on improving patient function\, whether it be simple daily tasks or complex activities like sports. He addressed the challenges of marketing the specialty to the public and the need for referrals from other medical professionals. \n\n\n\nProfitability and Medical Research Insights\n\n\n\nThe discussion centered on the relationship between profitability and medical research. Martin emphasized that most evidence-based medical practices are thoroughly studied regardless of financial incentives. The group explored how alternative treatments and the placebo effect influence patient outcomes. The placebo effect refers to a beneficial health response that occurs when a patient believes they are receiving an effective treatment\, even if the treatment itself has no active medical ingredient. Martin illustrated this point with an anecdote about a patient who experienced improvement using Cannabidiol (CBD)\, a non-psychoactive compound derived from the cannabis plant. \n\n\n\nThe conversation concluded with Roo seeking guidance about off-label medication use for improving motor function. Martin encouraged open dialogue with healthcare providers\, stressing the importance of asking questions and taking an active role in one’s own recovery. Working collaboratively with a medical team\, he noted\, is key to maximizing health outcomes. \n\n\n\nPhysiatrist’s Role in Neurological Treatments\n\n\n\nDr. Martin Lanoff explained the differences between central and peripheral nervous system injuries and the treatments available\, including the use of Botox for spasticity. Shelli asked about treatments for spasticity and nerve pain after a stroke\, and Dr. Lanoff suggested consulting specialists at Shirley Ryan AbilityLab\, a leading rehabilitation facility in Chicago\, IL. Roo inquired about medications for pain and brain healing\, and Dr. Lanoff clarified that while SSRIs can help manage depression and pain\, there is no proven medication to regenerate central nervous system tissue. The conversation ended with Susan thanking Dr. Lanoff for his insights and Kimia offering to address any further questions.
URL:https://circleofrights.org/event/ysg-introduction-to-physiatry/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251002T190000
DTEND;TZID=America/New_York:20251002T194500
DTSTAMP:20260619T154115
CREATED:20250626T204047Z
LAST-MODIFIED:20250626T204047Z
UID:4399-1759431600-1759434300@circleofrights.org
SUMMARY:TSG: Teen Stroke Group Meeting
DESCRIPTION:
URL:https://circleofrights.org/event/teen-stroke-group-meeting-5/
LOCATION:Zoom
CATEGORIES:Support Groups,Teen Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250930T193000
DTEND;TZID=America/New_York:20250930T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260203T172144Z
UID:4651-1759260600-1759263300@circleofrights.org
SUMMARY:YSG: Involvement in Your Community
DESCRIPTION:Layli presented on community engagement strategies for stroke survivors\, highlighting both in-person and virtual opportunities for connection and support. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryDownload\n\n\n\nThe presentation from the meeting is included below for reference. \n\n\n\nCommunity Engagement PresentationDownload\n\n\n\nQuick recap\n\n\n\nThe meeting opened with introductions and administrative updates\, including a new rule for electronic hand-raising and information about peer support volunteers. Layli presented on community engagement strategies for stroke survivors\, highlighting both in-person and virtual opportunities for connection and support. The discussion concluded with participants sharing personal experiences of community re-engagement after stroke or disability\, emphasizing the importance of gradual participation and support systems. \n\n\n\nSummary\n\n\n\nCommunity Engagement for Stroke Recovery\n\n\n\nLayli presented on community engagement for stroke survivors\, highlighting its benefits including stress relief\, reduced loneliness\, and brain-stimulating effects that support recovery. She shared three engagement strategies: adaptive sports\, volunteer opportunities\, and joining local groups\, while also emphasizing that community connection can be maintained from home through virtual support groups and other online activities. The presentation concluded with an invitation for Kellee and Shelli to share their experiences with community engagement. \n\n\n\nCommunity Engagement After Disability\n\n\n\nThe group discussed community engagement and volunteering after stroke or disability. Kellee shared her experience volunteering with the American Legion Auxiliary\, which supports veterans and first responders. Shelli described her journey of re-engaging with her community through online Spanish classes\, a volunteer mentoring program\, and teaching Spanish part-time at a private school. The group discussed strategies for re-entering community activities\, including starting small\, asking for accommodations\, and leveraging online opportunities. They agreed on the importance of community support for recovery and suggested that participants could take time to heal and gradually reconnect with their communities.
URL:https://circleofrights.org/event/ysg-involvement-in-your-community/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250923T193000
DTEND;TZID=America/New_York:20250923T201500
DTSTAMP:20260619T154115
CREATED:20250629T172908Z
LAST-MODIFIED:20260116T170854Z
UID:4650-1758655800-1758658500@circleofrights.org
SUMMARY:YSG: Language Plasticity
DESCRIPTION:Dr. Preeti Raghavan\, a physiatrist from Johns Hopkins University\, discussed language plasticity. \n\n\n\nBelow is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay\, please ask for the link on the YSG Slack channel. \n\n\n\nPrintable Version of Meeting SummaryDownload\n\n\n\nBelow is the technical presentation covered during the meeting for reference. \n\n\n\nWhat is AphasiaDownload\n\n\n\nQuick recap\n\n\n\nThe meeting began with introductions and small talk\, including discussions about data extraction formatting and a geographic map showing YSG member distribution. The main portion featured presentations by Dr. Preeti and Erin on aphasia and language issues related to stroke recovery\, including explanations of assessment tools\, brain language dominance\, and potential recovery methods through therapy and exercise. The conversation ended with discussions about speech exercises and supplements\, followed by the setup of a post-survey and Slack channel for community engagement. \n\n\n\nSummary\n\n\n\nStroke Recovery and Language Plasticity\n\n\n\nThe meeting began with Susan introducing a survey about language plasticity and stroke recovery\, which participants completed. Kimia then introduced the main speakers\, Dr. Preeti and Erin\, who are experts in stroke rehabilitation. Erin presented on aphasia and language issues related to brain injury and stroke\, sharing her expertise as a board-certified speech-language pathologist. The presentation was well-received\, and participants were encouraged to ask questions. \n\n\n\nUnderstanding Aphasia Assessment Tools\n\n\n\nErin explained that aphasia is an interruption in language function that primarily affects word retrieval and can impact various communication modalities\, including speaking\, writing\, and understanding. She described the role of a speech therapist as evaluating and assessing language strengths and areas for intervention using formal assessments like the Western Aphasia Battery and the Boston Naming Test. Layli inquired about the use of a specific assessment tool called the Modern Cookie Theft picture task. It is a 90-second picture description task that allows the speech therapist to analyze the patient’s language sample for number of content units\, syllables\, and overall efficiency of language production. Erin clarified that it is typically used initially to diagnose aphasia and may be repeated periodically to monitor progress\, though it can also be used informally for speech samples. \n\n\n\nLanguage Recovery and Brain Wiring\n\n\n\nErin explained that language dominance in the brain is determined by wiring\, noting that left-handed individuals might have language in the right hemisphere. She discussed the potential for aphasia recovery through therapy\, even after a long time post-stroke\, and mentioned a study at Hopkins using low current stimulation for word finding. Preeti added that regular practice and increased blood flow through exercise can improve language functions. \n\n\n\nSpeech Exercises and Supplements Discussion\n\n\n\nThe group discussed speech exercises and supplements. Layli suggested exercising while talking to improve speech\, while Lisa shared that exercise hasn’t helped her speech issues. Josh inquired about creatine’s potential benefits for cognition\, which Preeti said she would research further. The conversation concluded with Layli asking about language plasticity\, which Preeti explained as the brain’s ability to change\, clarifying that neuroplasticity and language plasticity are not separate concepts. \n\n\n\nStroke and Language Recovery Insights\n\n\n\nThe group discussed language and speech impairments following strokes\, with Beth sharing her experience of dysarthria after a cerebellar stroke and asking questions about language processing. Erin explained that while aphasia primarily affects language production\, the cerebellum’s connection to language centers could explain Beth’s observations. The discussion also covered multilingualism after stroke\, with Erin noting that the primary language tends to be more resilient\, and Aaron shared his experience of learning Spanish and Japanese post-stroke\, prompting Erin to discuss the role of neuroplasticity and stroke location in language recovery. \n\n\n\nSpeech Improvement Strategies Discussion\n\n\n\nErin and Preeti discussed strategies for improving speech\, with Erin suggesting that speaking intentionally and engaging muscles through regular conversation can be beneficial. Preeti introduced the idea of high-intensity speech therapy programs and taking acting classes as additional ways to challenge and improve speech skills. \n\n\n\nPost-Survey and Slack Channel Setup\n\n\n\nThe meeting focused on setting up a post-survey and a Slack channel for community engagement. Susan announced the launch of a poll with six questions\, which 20 out of 22 participants answered. She instructed everyone to join the Slack channel for further communication\, with Kimia offering assistance to those without access. Erin and Preeti were asked to monitor the Slack channel for questions from those unable to attend the meeting\, or who could not talk but could read and write.
URL:https://circleofrights.org/event/ysg-language-plasticity/
LOCATION:Zoom
CATEGORIES:Support Groups,Young Stroke Group
END:VEVENT
END:VCALENDAR