YSG: Interview with Fellow Stroke Survivor Layli

Layli told us about her stroke, the ramifications, and her work-arounds.

Below is a summary of what was discussed at the meeting. Young Stroke Group Members can also access a recording. If you’d like to watch the replay, please ask for the link on the YSG Slack channel.

Quick recap

Layli shared her personal stroke recovery journey and experience as a 29-year-old stroke survivor from California, including her challenges with socializing and career development. The group discussed Layli’s transition to serving the stroke survivor community and her future career aspirations in neuropsychology. The group discussed upcoming meetings and attendance impacts due to the holiday season.

Summary

Quiz for Stroke Survivor Insights

Susan and Layli discussed a new quiz they created to gauge the feelings of stroke survivors about their connections and hope for recovery. They planned to use the results for future grant applications. The quiz was launched during the meeting, and participants were asked to answer three questions. After analyzing the initial results, Susan ended the poll.

Overcoming Challenges After a Stroke

Layli shared her experience of having a stroke at age 24, which left her physically disabled and with speech issues. She described her hospital experience as lacking empathy, and mentioned that she blacked out the details for 2-3 months. Layli’s current challenges include socializing and establishing a career, as she feels out of sync with her peers due to the energy required for recovery. She has learned to cope by being intentional with her daily activities, focusing on one task at a time to avoid feeling depleted.

Career Transition to Stroke Advocacy

Layli discussed her transition from a planned career in medicine to dedicating herself to serving the stroke survivor community, a change deeply influenced by her own experience. She revealed that living with her mother became necessary after her stroke. Layli also shared that she passed her driving test on the second attempt and now drives with increased awareness and caution, leaving more space between vehicles and being extra vigilant about potential lane changes.

Stroke Survivor’s Journey and Support

Layli shared her personal journey of accepting her new reality after a stroke, emphasizing the importance of not craving the past and finding peace in the present. The group discussed how each stroke survivor’s experience is unique, and they offered support and encouragement to one another. Layli expressed interest in pursuing a career in neuropsychology, and the group suggested she consider public speaking, noting that her deliberate speaking style could actually enhance audience engagement.

Stroke Recovery and Language Plasticity

The group discussed the recent interview with Layli, who shared her stroke recovery journey, with Michelle expressing appreciation for the vulnerability and authenticity. Susan announced the next meeting will feature Dr. Preeti Raghavan from Johns Hopkins University discussing language plasticity, and mentioned upcoming holiday scheduling impacts. The group agreed to complete a post-meeting survey to help improve future sessions.